(Or, A Good Dose of Humility Never Hurts) Kim Wombles www.kwomblescountering.blogspot.com I’ll have been involved in the online autism community for three years this March. I’d say the community has changed, but I’m thinking it’s more that I changed over the years. People still bicker about the same kinds of things (some of the people are the same ones who’ve been at it for years), and the divides seem to be more entrenched than ever before, if you go looking in those places. I try to avoid that, now. Sometimes, when I make the round of blogs, of bloggers posting their deepest feelings, only to be roundly attacked by others, I want to respond, to get into the middle of things. Most of the time, though, now, I don’t. I shrug and move on. I ask myself first what possible good could come out of my investment. It isn’t that…
Month: January 2012
Shannon Des Roches Rosa www.squidalicious.com Courage is what it takes to stand up and speak; courage is also what it takes to sit down and listen. –Winston Churchill You’d think we parents of kids with special needs — righteous avengers that we so often are — would be extra-invested in listening to the self-advocates who share our children’s experiences, who in many cases used to be our children. You’d think someone like me, who truly believes behavior is communication, would take more time to understand why a self-advocate would criticize something I’d written, would ask for more information before reacting, would understand that a self-advocate can both be articulate and need communication accommodation. You’d think that, knowing how many times even well-meaning people have dismissed my son’s needs or spoken to him as though he was an obedient puppy, I’d understand how self-advocates might have very little patience for parents…
Seth Mnookin’s book The Panic Virus: A True Story of Medicine, Science, and Fear is a smart, compassionate, detailed history of vaccine misinformation and distrust. It’s being re-released in paperback tomorrow, with a new cover, a more direct subtitle, and a new afterword. TPGA editor Shannon Rosa talked with Seth last year about the motivation and goals behind The Panic Virus; she spoke with him again last week about his book’s intended audience; the critical and oft-misconstrued distinctions between vaccine court rulings and scientific proof; the frequently misunderstood role of vaccine reporting and compensation programs like VAERS and NVICP; and how pediatricians, OB/GYNs, and parents themselves can all contribute towards improved — and best — vaccine information practices. —- How are you feeling about the impact your book has had, with respect to your original goals? Are you reaching the folks you hope to reach? People who are aware of…