Poetry: My Voice, My Life

Amy Sequenzia Amy is a self-advocate who types her thoughts. The poem below is from her recent book of poetry My Voice: Autism, Life and Dreams. Please contact Amy to acquire your own copy of her book. My Voice, My Life Look at me. Go ahead, take a good look. What do you see? Weird? Silly? Pitiful? Can’t do anything? You might feel sorry for me You might pity me You probably think I should be treated like a child. I’ve heard and seen this before. “Can she understand me?” “Does she know what is going on?” “How can she make choices?” I understand your confusion But it is time for me to come out. Let’s just make something clear I am autistic, I am disabled, I have many special needs, I look different; I need help eating, walking, moving around. I do not need help Thinking. That’s what you…

Autism After 22: Nat’s First ISP Meeting

Susan Senator susansenator.com We had Nat’s ISP meeting today, which is basically an IEP for adults. Although there are fewer requirements for the service providers to fulfill for their clients, Nat’s service provider and also his dayhab/day program staff seem more than eager to outline comprehensive goals for him. Clearly charmed by his intense work ethic as well as his sudden smile and the occasional surprising flash of violet-blue Bambi eyes, his entire team wants to watch Nat soar. Everything I heard pre-22 told me that Autism Adulthood would be the dregs of the universe, but it has been the opposite for Nat. Yes, it is true that Nat has Priority One funding (because of occasional intense episodes of frustration that can become self-injurious) and so he has enough support in his life. He is lucky in that way, lucky in the way that would otherwise be considered unlucky, for…