NAS Professional Conference 14: Dr. Roy Richard Grinker

NAS Professional Conference 14: Dr. Roy Richard Grinker

Shannon Rosa

Wed, Mar 05 2014 20:21:36

NAS Professional Conference 14: Dr. Roy Richard Grinker

A compilation of live tweets from Dr. Grinker’s presentation The Cultural Origins and Futures of Autism Spectrum Disorders, at the National Autistic Society’s Professional Conference 2014 in Harrogate, UK. Any errors or omissions are my own. -SR

  1. shannonrosa

    Shannon Rosa@shannonrosa

    Dr. Grinker’s work centers on #autism, but from an anthropological perspective. Especially focusing on culture & perception. #NASprof14

    Tue, Mar 04 2014 11:49:36

  2. shannonrosa

    Shannon Rosa@shannonrosa

    Dr. Grinker’s #autistic daughter is now 22 years old. #NASprof14

    Tue, Mar 04 2014 11:51:37

  3. shannonrosa

    Shannon Rosa@shannonrosa

    We know very little about autism internationally, yet there is a wave of #autism awareness around the world. -Roy Richard Grinker #NASprof14

    Tue, Mar 04 2014 11:52:19

  4. shannonrosa

    Shannon Rosa@shannonrosa

    Traditional healers in South Africa find out about #autism the same way we all do – through the Internet. -Roy Richard Grinker #NASprof14

    Tue, Mar 04 2014 11:54:19

  5. shannonrosa

    Shannon Rosa@shannonrosa

    People in other parts of the world are as likely to click on the #NAS as they are to click on a local #autism doctor. -Grinker #NASprof14

    Tue, Mar 04 2014 11:55:12

  6. shannonrosa

    Shannon Rosa@shannonrosa

    Just because people study #autism in a culture doesn’t mean people consider the role of that culture in perceiving #autism: #NASprof14

    Tue, Mar 04 2014 11:55:52

  7. shannonrosa

    Shannon Rosa@shannonrosa

    #Autism societies around the world are common. But only a handful of countries actually count their #autistic people. -Grinker #NASprof14

    Tue, Mar 04 2014 11:57:04

  8. shannonrosa

    Shannon Rosa@shannonrosa

    The first basic step in #autism research in a country: Is there autism, and what does it look like? -Grinker #NASprof14

    Tue, Mar 04 2014 11:57:43

  9. shannonrosa

    Shannon Rosa@shannonrosa

    In cultures that value hierarchy/honorifics, like Korea, #autism may be detected when kids do not make that distinction. -Grinker #NASprof14

    Tue, Mar 04 2014 11:59:18

  10. shannonrosa

    Shannon Rosa@shannonrosa

    What do we mean when we talk about culture? The meanings and values that we attribute to the world, how we conceive of a person. #NASprof14

    Tue, Mar 04 2014 11:59:59

  11. shannonrosa

    Shannon Rosa@shannonrosa

    There is nothing in nature that suggests an #autistic person should be discriminated against. Culture makes that happen. -Grinker #NASprof14

    Tue, Mar 04 2014 12:00:41

  12. shannonrosa

    Shannon Rosa@shannonrosa

    Clinicians cannot reliably distinguish between #autism & #Aspergers, one reason for an umbrella diagnosis re: DSM 5. -Grinker #NASprof14

    Tue, Mar 04 2014 12:02:38

  13. wz9mfx67_normal-7854604

    Martin J McGuigan@MJMac88

    The diagnosis of Aspergers was of its time and helped destigmatise ASD at a time when it was stigmatised so served its purpose #nasprof14


    Tue, Mar 04 2014 12:06:14

  14. shannonrosa

    Shannon Rosa@shannonrosa

    The question should not be “Why is #autism so common today.” It should be “Why was autism so rare in the past?” -Grinker #NASprof14

    Tue, Mar 04 2014 12:03:07

  15. shannonrosa

    Shannon Rosa@shannonrosa

    @AppcessibleOrg Yep, that’s the idea — #autism has always been here.

    Tue, Mar 04 2014 12:12:39

  16. shannonrosa

    Shannon Rosa@shannonrosa

    Talking about the god-awful Ransom Notes campaign, how (among other serious problems) not based on any kind of science. #autism #NASprof14

    Tue, Mar 04 2014 12:10:48

  17. shannonrosa

    Shannon Rosa@shannonrosa

    The #antivaccine movement has piggybacked on the misconception of #autism causing loss and damage. Not surprising. -Grinker #NASprof14

    Tue, Mar 04 2014 12:11:59

  18. shannonrosa

    Shannon Rosa@shannonrosa

    Psychiatric diagnoses as techno-phenomena: How the world sees someone affects the way they see themselves. -Grinker #NASprof14 #autism

    Tue, Mar 04 2014 12:13:46

  19. shannonrosa

    Shannon Rosa@shannonrosa

    If something is cultural, it’s not fixed. We made it. That means we can change it, e.g., negative attitudes towards #autism. #NASprof14

    Tue, Mar 04 2014 12:15:19

  20. shannonrosa

    Shannon Rosa@shannonrosa

    #Autism wasn’t rare in the past. It’s just that other diagnoses were more common, e.g., childhood schizophrenia. -Grinker #NASprof14

    Tue, Mar 04 2014 12:17:38

  21. shannonrosa

    Shannon Rosa@shannonrosa

    When we talk about #autism, we cannot see it in isolation. We have to see it integrated in a matrix of culture/history. -Grinker #NASprof14

    Tue, Mar 04 2014 12:20:05

  22. shannonrosa

    Shannon Rosa@shannonrosa

    Race, class, poverty, gender, and geography all make a huge difference re: #autism diagnosis, and timing thereof. -Grinker #NASprof14

    Tue, Mar 04 2014 12:21:43

  23. shannonrosa

    Shannon Rosa@shannonrosa

    Kanner studied 11 kids when he described #autism in 1943. Many fathers were psychiatrists. This is not a random sample. -Grinker #NASprof14

    Tue, Mar 04 2014 12:25:28

  24. shannonrosa

    Shannon Rosa@shannonrosa

    Diagnosis drives services. So diagnosing #autistic people who had been overlooked in the past is a good thing. #autism -Grinker #NASprof14

    Tue, Mar 04 2014 12:27:00

  25. shannonrosa

    Shannon Rosa@shannonrosa

    Sometimes, what appear to be scientific advances are often products of culture & history. -Grinker #NASprof14

    Tue, Mar 04 2014 12:32:51

  26. CarolPoveyNAS

    Carol Povey@CarolPoveyNAS

    #nasprof14 @Autism #grinker the changes in attitudes in Korea came after film marathon – what appears as scientific advances is cultural


    Tue, Mar 04 2014 12:33:52

  27. shannonrosa

    Shannon Rosa@shannonrosa

    You can only find something that you’re looking for. #Autism awareness & understanding is a good thing, re: diagnosis. -Grinker #NASprof14

    Tue, Mar 04 2014 12:36:33

  28. shannonrosa

    Shannon Rosa@shannonrosa

    It may look like there is an #autism epidemic in New Jersey — but NJ gets more diagnoses because it provides good services. #NASprof14

    Tue, Mar 04 2014 12:38:33

  29. shannonrosa

    Shannon Rosa@shannonrosa

    Grinker does not think we have an #autism epidemic. He thinks we are finally getting accurate diagnoses numbers. That’s good. #NASprof14

    Tue, Mar 04 2014 12:40:11

  30. shannonrosa

    Shannon Rosa@shannonrosa

    With destigmatization of #autism, people advocate – for themselves, for their students, for their kids, for employees. -Grinker #NASprof14

    Tue, Mar 04 2014 12:41:09

  31. shannonrosa

    Shannon Rosa@shannonrosa

    Jim Sinclair: “We need & deserve families who can see us and value us for ourselves.” -Grinker #NASprof14 #autism #autistic

    Tue, Mar 04 2014 12:42:05

  32. shannonrosa

    Shannon Rosa@shannonrosa

    Re: window of plasticity & early intervention: Consider that Grinker’s daughter made her greatest strides after age 18. #autism #NASprof14

    Tue, Mar 04 2014 12:43:20

  33. shannonrosa

    Shannon Rosa@shannonrosa

    Functioning labels are not helpful. Some #autistic people can work while their friends w #aspergers cannot. Who is more “high functioning”?

    Tue, Mar 04 2014 12:46:50

  34. shannonrosa

    Shannon Rosa@shannonrosa

    It’s critical, not to mention respectful, to ask #autistic & #aspergers people how they want to be described. -Robyn Steward #NASprof14

    Tue, Mar 04 2014 12:49:18