Month: April 2016

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Disability

I See All These Amazing Programs for Children

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TPGA is observing Autism Acceptance Month by featuring accounts from autistic people about the differences accommodations (or lack thereof) make in their lives. Today’s story is from Mel Baggs, about the assumption that all kids should be able to work and play in groups — and that kids who can’t cope with group scenarios are just being difficult. Mel Baggs I see all these amazing programs for children Like really, really cool stuff, stuff that looks fun and educational at the same time, stuff that looks far more educational and far more rewarding than the school system, etc. I see them in documentaries, in videos online, in articles, etc. But then I’m always stopped short by something. Photo © Norton Gusky. Creative Commons License. [image: Schoolchildren of various races talking while gathered around a table.] Unless something fundamental changed about children between then and now. And in how children are…

Disability

Why Don’t You Just Learn X?

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TPGA is observing Autism Acceptance Month by featuring accounts from autistic people about the differences accommodations (or lack thereof) make in their lives. Today’s story is from Savannah Logsdon-Breakstone, about getting comfortable with asking for crucial accommodations — and setting one’s own boundaries about those supports. Savannah Logsdon-Breakstone crackedmirrorinshalott.wordpress.com When I first moved out, we didn’t realize that I needed the support that I do. I’ve talked about some of these things before on this blog, so I’m going to give each of them a paragraph. I understand general concepts around money management, but am unable to consistently apply it to my own life. (Example: I might need something but not get it, because I’m worried I won’t have enough money, even though it’s what the money is supposed to be there for.) Additionally, I have executive functioning issues that mean that making sure the right things happen at the right time…

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Disability

When Chairs Are the Enemy

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Photo © Just Dining Chairs  | Flickr / Creative Commons [Two taupe suede dining chair with blonde wood legs on a white background.] TPGA is observing Autism Acceptance Month by featuring accounts from autistic people about the differences accommodations (or lack thereof) make in their lives. Today’s example is from Aiyana Bailin, about how small accommodations changes, in this case choices regarding chairs, can have “huge results.” Aiyana Bailin restlesshands42.wordpress.com Once, at a convention of (mostly) autistic people, I observed a peculiar phenomenon. Chairs were arranged in a large circle, and perhaps 100 attendees gathered and sat. A handful of people, myself included, took their spot in the circle, but sat on the floor in front of their chair, rather than on the chair itself. This floor-sitting evoked no signs of disapproval; after all, most autistic people know that comfort doesn’t come in one-size-fits-all. But I’m used to people being…

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Disability

Under the Rainbow and On the Spectrum

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TPGA is observing Autism Acceptance Month by featuring accounts from autistic people about the differences accommodations (or lack thereof) make in their lives. Today’s entry is a poem by Queerability founder Kris Guin, about embracing acceptance, the spectrums of intersectionality, and rejecting shame. [image: The international disability symbol, in white, on a rainbow-striped background.] Kris Guin queerability.tumblr.com Back and forth Back and forth Back and forth Back and forth Male and female Male and female Male and female Male and female One end of the spectrum To another Culture is made up of Stimming Stimming And Pride Pride in Gender Sexuality And disability Acronym LGBTQ Add D For Disability All parts of me Included Accepted Respected No fear No shame No hiding Safe Intersectionality Embrace it Honor it Celebrate it We are Here Queer And disabled

Disability

On The Edge of Gone: Corinne Duyvis on Post-Apocalyptic Autism Accommodations

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TPGA is observing Autism Acceptance Month by featuring accounts from autistic people about the differences accommodations (or lack thereof) make in their lives. Today we’re interviewing autistic author Corinne Duyvis about her new science fiction novel On The Edge of Gone, in which a biracial, autistic, cat-loving teen girl is forced to fight for the accommodations she needs during a post-comet strike apocalypse — and if she’s going to make it on one of the spaceships that may be humanity’s only hopes for survival. [image description: Book Cover: Teen girl with her back to the camera, in front of an urban landscape with departing spaceships. Superimposed text reads “On The Edge of Gone, Corinne Duyvis.”] Thinking Person’s Guide to Autism (TPGA): On The Edge of Gone’s main character is Denise, a Dutch autistic teen girl trying to survive what very well may be the end of the world. Dystopian narratives…

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Disability

Tuned Into Acceptance: An Autistic Teen and His YouTube Channel

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TPGA is observing Autism Acceptance Month by featuring accounts from autistic people about the differences accommodations (or lack thereof) make in their lives. Today’s story is from Henny Kupferstein, about how her own autistic insights helped her guide her friend Ethan into creating videos that demonstrate his autistic perspectives, as well as accommodations that work for him. Henny Kupferstein www.hennyk.com Ethan loves watching the Super Nanny show. When he re-enacts the scenes of whining children, he is testing if other caregivers will respond in the expected manner as in the show. While behaviorists call this ‘scripting,’ interweaving his reality with the show allows him to predict how people might respond, based on what happened on TV. When others refuse to play along and insert themselves into the story, the ambiguity triggers a stress response in the face of the unknown. Ethan’s iPhone offers a unique glimpse into the way he…

Disability

Too Noisy

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TPGA is observing Autism Acceptance Month by featuring accounts from autistic people about the differences accommodations (or lack thereof) make in their lives. Today’s story is from Kathryn Hedges, about how noisy environments can disrupt her ability to process and function. Kathryn Hedges www.khedges.com I don’t fit the autistic stereotypes people learn from “autism awareness” campaigns: I’m an adult female who can converse with you (most of the time) and live independently with fewer supports than the average non-autistic person. (At least based on the number of times a week people tell me their friends or family did XYZ for them so why don’t I ask mine for help.) I’ve worked hard as an adult to learn social skills, which helps hide my autism and give me a veneer of “high functioning” over my interior “low functioning” with sensory issues and emotional regulation. One of the most disabling aspects of…

Disability

Building the Plane as We’re Flying It

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TPGA is observing Autism Acceptance Month by featuring accounts from autistic people about the differences accommodations (or lack thereof) make in their lives. Today’s story is from Sara Luterman, about the “frequent adjustments” that are necessary for her to be properly accommodated at her workplace. Sara Luterman www.nosmag.org The statistics around autism and employment can be incredibly discouraging. Forty-two percent of autistic people in their twenties — people like me — are unemployed, even though only 26% of overall young disabled people are out of work. This might seem counter-intuitive. After all, if someone can do well in college or even graduate school, surely they should be able to do well once they join the workforce? Unfortunately, it doesn’t work that way. Like many of my autistic peers, I have struggled to keep a job. I was fired from the first full-time job I ever had after just two weeks:…

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Disability

Not Accepted

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TPGA is observing Autism Acceptance Month by featuring accounts from autistic people about the differences accommodations (or lack thereof) make in their lives. Today’s story is from Mandy Klein, about how it feels when one’s ability to function fluctuates, but is not recognized or accommodated. Mandy Klein talesfromanautismfamily.blogspot.ca I am autistic, with the old label of Asperger’s, if that makes any difference — though it shouldn’t.  Speaking to communicate is not something I am good at. When my anxiety is bad and/or I am in public — especially in a group — my speaking ability is pretty much zero. I had a most horrible experience in a group specifically for autistic people to learn mindfulness. It was at an agency that is “aware” of autism, as they are an agency that specifically provides services to autistics. Are they an agency that is accepting of autistics? Not so much. The agency…