What I Want People to Know

Corina Lynn Becker nostereotypeshere.blogspot.com In my time browsing the online community, I often get asked about my story, what it’s like to be a late-diagnosed autistic and what I want people to know. This is rather odd, because I’m not in the habit of showing off my scars, but there are some things that I think that I can talk about. I want to be very honest with you. I am an adult living on social assistance, in a shared accommodation run by a non-profit housing organization. Despite being highly educated, I find it difficult to find and maintain a job on my own, and I’m not even sure that I ever will. I struggle to survive with few to no supports, mostly my family and the little that some organizations have been able to provide. It is, at times, very and extremely hard. There is a lot to remember,…

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Kodachrome

Jennifer Byde Myers www.jennyalice.com Can you remember developing photos, when you had no idea what you were going to get? We would turn in those little canisters and hope for something wonderful to come back in the envelope.  We used to spend a lot of money trying to get a good picture of our son. Capturing Jack on film required expert photography skills combined with the fastest shutter speed and endless rolls of film. It took money and patience and perseverance, and faith, and will, and cooperation and an ability to be spry that most people lose about the age of nine — and we failed, continuously. We don’t really have those “Kodak moments” in our family, and it’s not for lack of trying. We have been prolific in our clicking so as to produce at least some decent shots over the years, if only by the grace of statistics…

Being Employed With Asperger’s Syndrome

Michael V. Drejer twitter.com/maialideth When I was diagnosed with Asperger’s syndrome in 2003 at the age of 25, I had already pretty much given up hope of ever finding and getting a job that was right for me. All I had to show for my job skills was a high school diploma with a lousy grade average, and a few exams which I barely passed when I tried studying to become a school teacher and when I tried getting a bachelor degree in English at the university, neither of which I finished. Apparently it is difficult for people with Asperger’s syndrome to get a job or keeping a job, which was exactly what I had experienced as well. Fortunately, it does not have to be like that. In fact, hiring “aspies” for certain niche jobs can be of a great mutual advantage both for the aspie and for the company…

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Just Passing Through

Christa Dahlstrom hyperlexicon.blogspot.com If you spotted my six-year-old son on the playground or at recess, he wouldn’t stand out from the other kids. Like most boys this age, he loves playing any made-up game that involves running, shouting, fighting bad guys, fighting robots, or fighting bad guy-robots. If you were to watch him, you might even be impressed at the way he’s able to invent elaborate imaginative play scenarios and enlist other kids — kids he’s never even met — to join in the story. “A born leader,” you might think. “What an imagination.” You might also be impressed by his sophisticated vocabulary, peppered with “suddenly” and “meanwhile” and “actually” and maybe an occasional “shall” substituted for “will” for extra flair. “Smart kid. Polite, too,” you think, as you watch him introduce himself to kids and adults and request their names with an Emily Post-ian correctness. But if you hung…

Autism: Rainbows Abound

Heather E. Sedlock http://www.examiner.com/x-10560-Special-Needs-Kids-Examiner “Autism is a Rainbow” is one of several autism metaphors used by the autism community. These metaphors shape thoughts and beliefs about autism, and influence the actions of individuals. Metaphors also impact family members who have autism, as how their family members view them can influence how they view themselves. To appreciate autism metaphors’ community influence, a definition of autism is necessary. Autism is a pervasive developmental disorder typically characterized by: “Poor social interaction (this can include lack of eye contact, and social exchange, both verbal and non-verbal) “Language delay (expressive language is equally important as receptive language; repetitive phrases and inability to initiate dialog or support it) “Obsessive behavior (this can include inflexibility, repetitive physical movement and fixation on objects).“* Autism Is a Rainbow The rainbow is an object of beauty, something to be seen and appreciated. There is nothing wrong with a rainbow. The…

Inclusion: Make It an Open Classroom Discussion

Diane Levinthal http://www.socialstrides.com Sensitivity and compassion can result from having kids with autism and social challenges included in regular education classrooms. It is also likely that there will be no choice other than inclusion, financially, in the future. Classrooms will have to accept differences (and I write this knowing that every child is “different”). How do we make inclusion positive for everyone involved? I taught in a district autism spectrum inclusion project, have worked in speech for 25 yrs, and have a middle school child with PDD/ADHD. In my experience, what is important and overlooked is that regular education peers are not given good information. The teachers are trained (supposedly) as are the other staff, but the kids themselves are told little besides “Do unto others as you would have them do unto you.” It has been my observation that in kindergarten and early elementary school, most kids are either…

Questionable Autism Approaches: Facilitated Communication and Rapid Prompting Method

Thinking Person’s Guide to Autism no longer supports the conclusions behind the original version of this post, and in fact opposes efforts to deny autistic people communication options based on outdated and insufficient evidence. We will be posting a full statement on our current position shortly. Shannon Rosa TPGA Senior Editor August 5, 2016

What Now? Ten Tips for Families with a New Autism Diagnosis

Squillo http://confutata.wordpress.com I’m sure the person who said hindsight is 20/20 didn’t have a child with autism. (Actually, I’m sure he or she didn’t have a child of any kind.) You’re never finished being a parent: as the Jason Robards character said in the movie Parenthood, “you never get to spike the ball and do your touchdown dance.” I have no idea if some of the things I’ve done will end up having helped or hindered my attempts to attain that Holy Grail of Parenthood: happy, healthy children. Of course, this has nothing to do with autism, and everything to do with just being a parent, but there are challenges (and joys!) specific to parenting a child with autism, hence the birth of this group and this website. Shannon, one of The Thinking Guide to Autism’s founders, asked me to put together a list of things I wish I’d known…

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(Extra) Ordinary Days

Kristen Spina http://kristenspina.wordpress.com/ I hang back, following but not too closely, watching my son and his two best friends through the viewfinder, my face hidden behind the awkwardness of a zoom lens. As I watch the boys cross the red wood bridge, I snap half a dozen photos. And then again, as they settle in on the dock, taking turns casting, tossing pieces of bread to a giant turtle bobbing on the lake’s surface. There is little to show here for my son’s differences. He is simply one of the guys, enjoying a bit of freedom and fun on a weekend in the Catskills. I scan the lake and the mountains beyond, the grey clouds sitting low in the sky, and think about how remarkable the scene really is — how its very ordinariness is something to celebrate. I take a few more pictures, then leave the boys to their…

What is Neurodiversity?

Mike Stanton actionforautism.co.uk When I attended the National Autism Society’s first International Autism Conference in London in 2005, I heard Professor David Amaral tell the story of a young man with Asperger Syndrome who visited the MIND Institute at UC Davis. The young man was asked what he would do if they could develop a pill to cure autism. He thought for a while before replying that he would take half the pill. I think this illustrates a real difference within the autism community. There are many who pathologize autism as a disorder that afflicts an otherwise healthy individual. If you hold this idea you naturally look to understand the causes of autism in order to find that “autism pill.” The idea of neurodiversity was developed by autistic people in opposition to the pathologizing model. According to them autistic people are not disordered. They have a different sort of order.…