Jenny Mai Phan is an Asian American autistic autism researcher, an Interagency Autism Coordinating Committee (IACC) member, and the mother of four children, two of whom are autistic.
Parents should tell their children they are autistic in ways that help them understand and feel good about who they are.
Our senior editor Shannon Rosa was invited to participate in the 2021 UC Davis Neurodiversity Summit, on a panel debating the role of the Neurodiversity Movement in supporting and including autistic people with intellectual and communication disabilities.
“I have no doubt that the individual researchers I have encountered are well-meaning and sincere in their desire to positively impact the world. However, there appears to be a total lack of awareness of current reproductive medicine practices’ bias against neurodivergent people, never mind the implications.”
What if the headlines had read, “Autism doesn’t have to be a problem if children are understood and supported”?
AutINSAR is a conversation between autistic people and/or autism researchers about needed autism research directions, priorities, oversights, course corrections, and goals.
“When an academic writes accurately about aspects of autistic lived experience in their research, some people grumble. “All they needed to do was ask me and I would have told them,” some will say.”