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Field Notes From an Inbox: Four Years of Autistic-Led Advocacy in Canada

[image: Neurodiversity flag at Toronto City Hall, April 2019. Photo by Anne Lesserknaus.] Anne Borden King twitter.com/againstcures twitter.com/a4aontario a4aontario.com In the summer of 2017, five of us launched an autistic-led advocacy organization in Canada, called Autistics for Autistics (A4A). Our mission was to fight for the rights of autistics to have safe childhoods, communication rights, inclusive schools, trauma-free housing, fair employment, accessible health care and community equality. We centred both children and elders in our work, following the UK model. We took a grassroots approach, eschewing hierarchies in favour of a multifaceted strategy, working to make as much change as we could. What we lacked in funding, resources, and relationships, we’ve made up for in vision and persistence. In one of our first meetings with a Member of Parliament, she told us that our group “should just represent the autistic adults,” and leave the matter of children’s rights to Ontario’s…

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Conflicts of Interest in Early Autism Intervention Research: A Conversation with Dr. Kristen Bottema-Beutel

Photo courtesy Dr. Bottema-Beutel [image: Formal photo of Dr. Bottema-Beutel, a smiling white woman with medium-length side parted brown hair.] Advocates of early autism interventions often claim such approaches are “evidence based,” whereas critics have long pointed out individual flaws in cited studies. We were glad to learn about Dr. Kristen Bottema-Beutel’s analysis of general conflicts of interest in early autism research, and talk with her about how her findings complicate assertions about being early autism interventions being evidence based, and what else she and her team discovered. —- Thinking Person’s Guide to Autism: Can you tell us why you decided to pursue this analysis of conflicts of interest (COIs) in early autism intervention research? Bottema-Beutel: The short answer is that I’ve been following Michelle Dawson on Twitter (her handle is @autismcrisis). Michelle is an autistic researcher who has been sounding the alarm on undisclosed COIs for more than a decade—before I…