Listen to me. Please. I went to therapy for countless hours over countless years to be able to identify and express my needs and now that I finally can, it seems like it doesn’t matter.
Tag: accessibility
We talk with Dr. Mary Doherty and Dr. Sebastian Shaw of Autistic Doctors International about how undetected barriers to health care for autistic people can lead to delayed care, serious complications, and sometimes even fatalities.
Something that would make my life easier would be accessible virtual health care; in other
words, NOT by phone.
Overall, the hearing aids have been hugely helpful. It’s easier to participate in conversations and less tiring. I no longer feel like someone’s spraying me with a hose full of confusion and painful sounds—I’m just interacting! It’s also much easier to be around background noise.
Shannon Des Roches Rosa twitter.com/shannonrosa I want to make this as friendly as possible, so I think it’s important to start by clarifying terms: Inclusion, my lovelies, is a real and basic human right, and it simply means autistic and other disabled people have the right to be out and about in the world, and not segregated or hidden away as used to be the default for their community members. Inclusion does not mean forcing people like my high-support autistic son to be in places they don’t want to be, that aren’t set up for them, or in which they aren’t welcome. But even when we embrace inclusion as a disability rights baseline, my son still doesn’t get to do all the things—but that’s because of accessibility barriers, not because inclusion itself is a flawed concept. Even though The Americans with Disabilities Act (ADA) installed accessibility as the law of our…
Color Communication Badges by Button Justice League, on Etsy [Image Description: Three 1.5 inch pinback buttons each with a vivid color, a bold black word and a black shape underneath the text. From left to right: a “Red” button with a octagon, a “Yellow” button with a triangle, and lastly a “Green” button with a circle.] Lydia X. Z. Brown @autistichoya [Note from Lydia: This originally appeared on Twitter as a thread on 4 June 2018, and is an incomplete list of suggestions.] Some tips on access-centered event/program organizing/planning (some are mine; many I learned from other fabulous folks): (1) When you put information about the event online, whether on (a) a website, (b) in email announcements, or (c) social media, only include images if you include alt-text and text-only captions. (2) Don’t rely on online/email/social media to get the word out. Call people too. Many comrades with intellectual disabilities…
Accessibility is too important for us to ignore just because it can be difficult or unpopular. We also can’t choose one group and decide to make everything accessible to them, and inaccessible to other people.
Maxfield Sparrow unstrangemind.com Photo © Stephen Melkisethian | Flickr/Creative Commons [image: Black-and-white photo of disability rights protesters at the U.S. Capitol: some using wheelchairs, some not.] We educated our legislators. We wrote letters and made phone calls. We worked hard to get the message across, yet the House judiciary committee has chosen to take the next step to dismantle the Americans With Disabilities Act (ADA): H.R. 620 will go in front of the entire House of Representatives for a vote. We have no idea yet when that vote will be, so we need to renew our efforts to educate and persuade our lawmakers, so they will act to protect the ADA, and reject H.R. 620 and its agenda to confuse and limit the ADA. As I wrote back in May, “Unless we educate our legislators about the harm of notification bills like H.R. 620 and similar state-level legislation, the ADA Title…
Maxfield Sparrow unstrangemind.com [image: The comics character Charlie Brown, sitting up in bed with his head in his hands, under a speech bubble reading, “My anxieties have anxieties.”] I wasn’t sure if I would write about this or not. I have shared many deeply personal and private things with my readers, but this is hard and humiliating and I’m not even sure why this is harder to share, but it is. So please be gentle. I have anxiety so bad and have had it for so long that I didn’t even realize how anxious my baseline state is until the first time I smoked marijuana and experienced what it’s like to feel peaceful. My anxiety makes every day a struggle. Even my good days are riddled with anxiety. As I said, it is my baseline state. I should add that therapy makes me more anxious. Every so often I struggle…
Kris Guin queerability.tumblr.com Source: Mel Green/Flickr [image: Church wall hanging: rectangular quilt reading “Welcome” in blue letters, surrounded by red hearts in white diamonds, on a swirly rainbow background.] I think that communities and people of faith should make social justice work a priority. Not only do I think that people of faith have a moral imperative to make the world a better place, but I think it’s good for the faith community. I don’t know how non-Christian faith communities are, but I think the Church and church* are inaccessible to many folks. Dressing up in nice clothes is a social standard in many churches because of the belief that you need to “dress up for God.” This prevents many people from being able to go to church on Sundays because some people might not be able to afford nice clothes, or some people might have sensory issues with nice…