If I don’t have the right information, I risk doing the task incorrectly and having to redo something in a different way and/or having someone get angry with me, angrier than when I was just asking questions.
Listen to me. Please. I went to therapy for countless hours over countless years to be able to identify and express my needs and now that I finally can, it seems like it doesn’t matter.
We talk with Dr. Mary Doherty and Dr. Sebastian Shaw of Autistic Doctors International about how undetected barriers to health care for autistic people can lead to delayed care, serious complications, and sometimes even fatalities.
Something that would make my life easier would be accessible virtual health care; in other
words, NOT by phone.
For a person with heightened sensory sensitivity, clothing and accessories can make or break an entire day out; here are suggestions for clothes, accessories, and miscellaneous accoutrements that might work.
“The way we diagnose kids overwhelmingly leads to Black and Latino kids getting diagnosed with behavioral disorders instead of autism. It also excludes a lot of women and femme people, to say nothing of transgender males and nonbinary people. We also ignore a lot of people for whom English is a second language.”
Overall, the hearing aids have been hugely helpful. It’s easier to participate in conversations and less tiring. I no longer feel like someone’s spraying me with a hose full of confusion and painful sounds—I’m just interacting! It’s also much easier to be around background noise.
Shannon Des Roches Rosa twitter.com/shannonrosa I want to make this as friendly as possible, so I think it’s important to start by clarifying terms: Inclusion, my lovelies, is a real and basic human right, and it simply means autistic and other disabled people have the right to be out and about in the world, and not segregated or hidden away as used to be the default for their community members. Inclusion does not mean forcing people like my high-support autistic son to be in places they don’t want to be, that aren’t set up for them, or in which they aren’t welcome. But even when we embrace inclusion as a disability rights baseline, my son still doesn’t get to do all the things—but that’s because of accessibility barriers, not because inclusion itself is a flawed concept. Even though The Americans with Disabilities Act (ADA) installed accessibility as the law of our…
For instance, autistic inertia means that it’s harder for autistic people than it is for other people to stop, start, and change activities.
If parents can try to figure out why autistic children have the urges to break things, and then accommodate them as much as they can, everyone can have a much easier time. Not always, but in many cases.