Kerima Çevik, a Black woman over 50 with braided gray hair wearing Neurodiversity 3.0 by ThinkGeek, a black T-shirt with a world globe design on the upper chest area in the shape of a human brain, colored in physical map fashion i.e., water is colored light blue and land masses green, clouds white, looking to her left over bent wire-rimmed glasses in that way that mothers look at their children when an outrageous behavior has just ensued.

#AutisticWhileBlack: Diezel Braxton And Becoming Indistinguishable From One’s Peers

Kerima Çevik theautismwars.blogspot.com The author’s idea of what displaying autism positivity looks like [Image: a Black woman over 50 with braided gray hair wearing Neurodiversity 3.0 by ThinkGeek, a black T-shirt with a world globe  design on the upper chest area in the shape of a human brain, colored in physical map fashion i.e., water is colored light blue  and land masses green, clouds white, looking to her left  over bent wire-rimmed glasses in that way that mothers look at  their children when an outrageous behavior has just ensued.] There is an article in a paper called The Daily Net, about singer Toni Braxton’s 16-year-old son Diezel working as a professional model for the past two years. The article refers to him as “formerly autistic.” It goes on to say he has, “fortunately, moved past” autism and is now a celebrity himself. Apparently, when her son was thirteen, Ms. Braxton…

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#AutisticWhileBlack: To Siri With Love’s Shallow, Dangerous Take on Forced Sterilization

Kerima Çevik intersecteddisability.blogspot.com theautismwars.blogspot.com Kerima Çevik, photo courtesy the author [image: Gray haired Afro-Latina woman next to a windowshade, looking to the left.] [Content note: Contains descriptions of involuntary medical procedure, including sterilization, on Black and disabled people.] I am trying to plow my way through Judith Newman’s autism parenting book To Siri with Love: A Mother, Her Autistic Son, and the Kindness of Machines. It is slow, painful reading. How can I explain my serious ethical concerns about yet another bestselling autism book that capitalizes on presenting the experience of disability from a parent’s reduction of a disabled individual’s worth to how he makes his mother and those around them feel? I can tell you that Newman’s passage about looking forward to acquiring a medical power of attorney so she could involuntarily sterilize her autistic son Gus tainted the rest of the book for me. A vasectomy, she says. That…

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Black and Autistic – Is There Room at the Advocacy Table?

Dr. Poinsett aka Godmother Doc and @yayayarndiva [image: photo of a Black woman with short silver-and-black hair.] Dr. Pierrette Mimi Poinsett Over the last year, the Nation of Islam — which does not represent mainstream Islam — has resurrected the fallacious “CDC Whistleblower” argument that vaccines, and the MMR vaccine in particular, is causing autism in Black males. That autism is something to be feared, eradicated. At times the rhetoric has gone so far as to accuse vaccines of killing black and brown children. As both a Black pediatrician and mother of a son with severe mental health and learning disorders, I know that vaccines prevent diseases, save lives, and do not cause autism. Many studies unequivocally show that there is no connection between vaccine components and the development of autism. Autism manifests independently of the vaccine schedule. The reality is that autism is a complex neurodevelopmental condition that likely…

Two Stories: Autism’s Financial and Racial Limitations

Kerima Çevik theautismwars.blogspot.com Several years ago, I attended a meeting of parents and care providers to discuss the lack of county services available for their loved ones on the autism spectrum. At the meeting, an African American medical professional told me something that still gives me pause: “Autism is a disability for the rich,” she said. “Only the wealthy can afford the costs of the intensive early interventions we as parents need to help our children succeed.” She continued, “As African Americans, we are disproportionately caring for our children on the spectrum as single parents, with limited means, and are dependent on institutions like our public schools to give whatever supports they can.” As I continue my three year fight for appropriate supports for my own child, I ask myself each day, “Was my acquaintance correct? No matter how diligently I try, no matter the effort I make, will I…

On the Verge of a Meltdown

Prather Harrell www.africanamericanautismofaz.org No, not my autistic five year old son … I’m the one on the verge of a meltdown! It was one of those days where I could not seem to make anyone happy. Jonah, my five year old, had been having a bad summer all along. I can’t say that I blame him. Here we go changing his schedule around from KinderPrep (ABA/habilitation) in the mornings and public preschool in the afternoons with a few therapies sprinkled in between, to therapies in the morning and KinderPrep in the afternoon and no more Mrs. Marsha period (his preschool teacher – Jonah completed preschool this spring and will be headed to Kindergarten this fall). The teachers changed, the students changed, some of his therapists changed — we flipped his entire schedule around and no one ever consulted him about it. I guess I’d be pretty pissed too if somebody…