Shannon Des Roches Rosa www.squidalicious.com Photo © Jeffrey Beall | Flickr / Creative Commons [image: Photo of metal letters spelling “Science” affixed to a brick wall.] At a recent workshop on How to Find Autism Information That Will Help You, I noted that a key factor for evaluating an autism resource is: Who does the approach primarily benefit? Autistic people themselves, or people affiliated with autistic people, such as families or teachers? It’s important to identify this aim, because approaches that support autistic people in living lives of maximized happiness and potential can be very different from the parent-centered approaches—which too often portray autistic people as problems to be managed and controlled. We at Thinking Person’s Guide to Autism support the helping approach, and routinely criticize the problem/control approach—an ongoing effort as the latter remains pervasive both in popular culture, and in research. The problem/control approach is also a theme…
Tag: Amy Sequenzia
This month we’re asking our autistic community members What Do You Want? What Do You Need? We’ll be featuring their answers all April long, right here. Today we’re having a conversation with autistic advocate Amy Sequenzia. Please read, listen, and share. What are some things you like people to know about you? That I might need a lot of help with things that are simple and easy for most, but my activism begins in my brain, and my brain is accessible only to me. What are some things that make you happy? Why? Acceptance of who I am, because I should not be required to wait to be welcomed in the world, yet that’s the reality sometimes. Smiles make me happy too What are some things you avoid whenever possible? Why? Conversations about autism that don’t have Autistic voices because these conversations usually miss the point. But I think “avoid”…
Amy Sequenzia Respect for one another is one basic quality if we want to have meaningful conversations and relationships with other human beings. The ableism that disabled people experience is a form of disrespect. I have been trying to understand why some people find it so difficult to act respectfully towards disabled people, especially disabled adults. I am talking about people everywhere: people who do not have any experience with disabilities; people who have spent many years among the disabled; professionals who cannot see the whole person, only deficits; “advocacy” groups who refuse to stop using the “pity” language; even some parents, who love their children but forget that, by disrespecting us, they are disrespecting their children too. I am trying to understand why ignoring my presence, in my own home, seems to be a visitor’s acceptable behavior. During a state mandatory visit, two nurses came to my home, greeted…
Amy Sequenzia is an autistic self-advocate and poet. She types using Facilitated Communication (FC). She talked with us about what FC allows her to do, and what she would like people to know about it. What does Facilitated Communication (FC) mean to you? Why does it work for you? FC is how I can make my voice heard. I can say what I think, how I feel and I can be active in conversations, instead of being a passive observer. It works for me because nothing else did. My body can be very uncooperative and my mind can go from very active and unfocused to focused and calm — and back — in a very short time. It helps to have someone close to me for support, encouragement and to help me focus again. Physical support is important when I get spastic and when my arms get too heavy for…
Amy Sequenzia Amy is a self-advocate who types her thoughts. The poem below is from her recent book of poetry My Voice: Autism, Life and Dreams. Please contact Amy to acquire your own copy of her book. My Voice, My Life Look at me. Go ahead, take a good look. What do you see? Weird? Silly? Pitiful? Can’t do anything? You might feel sorry for me You might pity me You probably think I should be treated like a child. I’ve heard and seen this before. “Can she understand me?” “Does she know what is going on?” “How can she make choices?” I understand your confusion But it is time for me to come out. Let’s just make something clear I am autistic, I am disabled, I have many special needs, I look different; I need help eating, walking, moving around. I do not need help Thinking. That’s what you…
We’re featuring “Slice of Life” conversations with Autistics of all ages — kids through adults — throughout April’s Autism Acceptance Month Our goal is to help TPGA readers understand that autistic people are people who have interesting, complicated lives and who are as diverse and varied as any other population united by a label. We are the people in each other’s neighborhoods, and the more we know about each other — the more visible autistic people and children are — the more common autism acceptance will be. That is our hope. Today we’re talking with Amy Sequenzia, a self-advocate who types her thoughts. What is your name? Amy Sequenzia (my full name is Amy-Christine Sequenzia). Do you have a website? No. I will have my own blog soon. Meanwhile I have been blogging for Ollibean. What would you like a one-sentence description of yourself to say? Autistic self-advocate and poet.…