When we deny the validity of self diagnosis, we fail to recognize how broken health care systems can be. We effectively restrict our support to those privileged to afford a formal diagnosis.
Tag: Andrew Wakefield
Emily Willingham emilywillinghamphd.com Stomach Endoscopy. Source: Wikimedia Commons Are autism, gut inflammation, and immune issues linked? One recent sponsored supplement published in the journal Pediatrics argues that they are. There’s certainly some evidence, although quite mixed, hinting at a link between immune or gut issues and a subset of people with autism, although which one triggers the other is nowhere near resolved. What one might hope is resolved is that it’s difficult to construct solid scientific arguments on a shaky foundation that incorporates retracted papers. Th Pediatrics GI-autism supplement reflects information derived from a symposium conducted in 2009, one convened to talk about GI problems and autism. The authors are recognizable as those whose interest has very much been focused on autism as inflammation, particularly gut inflammation. The problem has been pinning down specifically what that inflammation might be and where it occurs. To demonstrate that such evidence has been identified,…
Liz Ditz lizditz.typepad.com On March 3, 2012, Mr. Justice Mitting of the UK’s High Court of Justice ruled that the UK’s General Medical Council (GMC) had acted improperly in Professor John Walker-Smith’s hearing on charges of serious professional conduct, and therefore he quashed both the finding of serious professional misconduct and the sanction of erasure. (You can find the entire ruling at http://www.bailii.org/ew/cases/EWHC/Admin/2012/503.html.) It’s important to be very clear about what this ruling means. Mr. Justice Mitting did not find that Professor Walker-Smith’s actions were medically necessary or ethical. The ruling does not exonerate Walker-Smith. That was not what the hearing was about. Mitting was only ruling on the conduct, the decision-making, of the GMC’s Fitness to Practice panel. More broadly, Mitting found aspects of the GMC’s procedures to be flawed. And Mitting’s ruling has nothing to do with the retraction of the 1998 paper. It’s still retracted. It does not validate Andrew Wakefield’s integrity, or affect the…
I got a chance to talk with Dr. Robert Goldberg PhD about his new book “Tabloid Medicine.” In it he breaks apart the formula for Tabloid Medicine: change the terminology to fit your agenda, create an instant expert, play the little guy against the big guy, proliferate bad information, then find a celebrity to lead the charge. Voila! Your very own epidemic-I make light, but this book doesn’t, since it’s not really a funny topic. We spoke of how he came to the topic as a parent, when his own daughter struggled with misinformation in the media, but continued, fueled by the tragedy that with so much good the internet could be doing, it was being “hijacked” by the likes of Andrew Wakefield, Jenny McCarthy, David Healy, Sidney Wolfe MD, and Barbara Loe Fisher. Passionate about the subject, and well-grounded by facts, Dr. Goldberg answered a few questions for me.…
Liz Ditz http://lizditz.typepad.com/i_speak_of_dreams/ http://lizditz.typepad.com/academic_remediation/ I have been thinking about this issue, and this post, for several days now, since a friend who is a science blogger sent on an email from the British Medical Journal (BMJ) about yesterday’s revelations alleging Andrew Wakefield’s fraud. I couldn’t speak or write about it, as the BMJ had strongly requested that the story not be made public (“embargoed”) until 4 pm January 5 2001 PST. That email had links to the full text of editorial, article, and references revealed yesterday. As I studied the material and references, one of the things that I kept in mind was the community that has grown up here at The Thinking Person’s Guide to Autism, and how we have managed to keep talking through differences of points of view and of opinion. I treasure that continued conversation and I believe it is one of the most valuable things…
JoyMama elvis-sightings.blogspot.com My six-year old daughter Joy loves Baby Einstein videos, and has found them mesmerizing since infancy. I’ve heard them so often that I practically know them by heart, including the promotional material at the end of the VHS tapes. In one of the self-advertising sequences, Julie Aigner-Clark, creator of Baby Einstein, is heard to exclaim, “As moms, we’re all looking for help … and if a mom tells you, ‘Try this, it works,’ you automatically try it if you’re a mom!” She wasn’t talking about alternative therapies for autism. But as the mother of a child on the autism spectrum, I hear the echoes. One place I heard such reverberations was in a Time magazine article on Jenny McCarthy and autism1, in the March 8, 2010 issue. Actress and former Playboy Playmate Jenny McCarthy, whose son was diagnosed with autism in 2005, has become the celebrity-mom face of…