Too Noisy

TPGA is observing Autism Acceptance Month by featuring accounts from autistic people about the differences accommodations (or lack thereof) make in their lives. Today’s story is from Kathryn Hedges, about how noisy environments can disrupt her ability to process and function. Kathryn Hedges www.khedges.com I don’t fit the autistic stereotypes people learn from “autism awareness” campaigns: I’m an adult female who can converse with you (most of the time) and live independently with fewer supports than the average non-autistic person. (At least based on the number of times a week people tell me their friends or family did XYZ for them so why don’t I ask mine for help.) I’ve worked hard as an adult to learn social skills, which helps hide my autism and give me a veneer of “high functioning” over my interior “low functioning” with sensory issues and emotional regulation. One of the most disabling aspects of…

Autistics, Media, and Misrepresentation

Paula Durbin-Westby is an Autistic advocate and an autism parent. She and her son recently appeared in the PBS P.O.V. documentary Neurotypical, a film meant to challenge public perceptions of Autistic people as well as allow Autistics to represent themselves. Paula’s portrayal in the final version of the film, however, was not at all what she was expecting. We talked with her about the distress of being publicly misrepresented as an Autistic, as well as her recommendations for filmmakers and other media types hoping to accurately portray Autistic experiences. What was your goal in agreeing to be interviewed for Neurotypical? My point was to counter pernicious media assertions that Autistics (and other people with neurobiological disabilities) are incapable of parenting and relationships. Unfortunately, I think the film’s portrayal of me has actually reinforced some of those assertions.  I don’t have any problem with being shown as disabled, or as Autistic.…

(Not) a Little Slow

Cynthia Kim musingsofanaspie.com There is a moment I dread in conversations with strangers: the moment when that stranger — that person I’ve been talking to for a minute or two or five — decides I’m “a little slow.” It doesn’t happen with every stranger, but it happens often enough that I can pinpoint the moment a conversation turns. To start, we’re both on our best interacting-with-a-stranger behavior, a bit wary, a bit too friendly, whatever. Then I slip. I miss some key bit of information, ask the other person to repeat something one too many times, stutter, backtrack, repeat myself, interrupt again, lose the thread of the conversation, take a joke literally, perseverate. There are a lot of ways it could play out. The response — the one that makes my skin heat up and my heart race and the blood in my ears pound — is subtle but sudden.…