TPGA Coverage of IMFAR 2012

Can’t make IMFAR? Don’t worry, four of our TPGA editors are covering the International Meeting for Autism Research in Toronto, Canada, from Wednesday May 16 through Saturday May 19. Reporting starts with today ‘s 11 AM ET press conference (assuming Shannon & Jen make their flight, which has been delayed, eep — stand by).  Panel & presentation coverage will be posted here www.thinkingautismguide.com, via Twitter, and of course on the TPGA Facebook page. Follow us on Twitter at @thinkingautism, @jennyalice, @aspieadvocate, @ejwillingham and @shannonrosa. And if you’re at IMFAR, you can also buy our books at the Autism Science Foundation table — 100% of sales benefit the ASF. If you see one of us, say hi! Science devotees out!

Professional photo of Carol Greenburg, a white Jewish woman with short platinum and silver hair.

Carol Greenburg and Autism Acceptance Month

We’re featuring “Slice of Life” conversations with Autistics of all ages — kids through adults — throughout April’s Autism Acceptance Month. Our goal is to help TPGA readers understand that autistic people are people who have interesting, complicated lives and who are as diverse and varied as any other population united by a label. We are the people in each other’s neighborhoods, and the more we know about each other — the more visible autistic people and children are — the more common autism acceptance will be. That is our hope.  Today we’re talking with rapier-witted TPGA editor Carol Greenburg, who among her many talents gets every Star Trek references we lob at her. Do you have a website? My company’s website is www.nyspecialneedsconsulting.com What would you like a one-sentence description of yourself to say? Tiny, powerful and a trip and a half. (You can tell I’m autistic because I…

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Kate Winslet’s Autism Awareness Project: The Golden Hat

Carol Greenburg, Shannon Des Roches Rosa, and Jennifer Byde Myers www.ThinkingAutismGuide.com Thinking Person’s Guide to Autism editors Carol, Shannon, and Jennifer recently attended an event celebrating the work of Kate Winslet. Kate has a new autism awareness and fundraising book coming out next month called The Golden Hat: Talking Back to Autism. We were told the book is meant to shine “a light on a world very few people understand […] about people with profound autism and the challenges they and their families face every day, as well as all the ‘beautiful potential’ of people with autism.” The event was hosted by Ladies’ Home Journal, and featured Margret Ericsdottir, whose son Keli is the inspiration for The Golden Hat Foundation. (Kate is currently on the cover of LHJ, talking about how she was inspired to create The Golden Hat book and foundation with Margret; Margret is the foundation’s President and…

Five Ways to Help Reduce Problematic Behaviors

Kathi Flynn tips4specialkids.com If you are responsible for a child who has behavioral outbursts, you’re likely looking for ways to reduce both the behaviors and their intensity. As a behavior specialist, I have learned many reactive strategies that help to reduce existing behaviors. Though it’s critical in such scenarios to find the functions of the behaviors by conducting a Functional Behavior Analysis and setting up a Behavior Intervention Plan (BIP)1, here are five strategies/consequences to try in the heat of the moment: Ignore the Behavior Do not verbalize the behavior that is happening. If a child is doing something dangerous to himself or others, you obviously have to intervene, but you still do not have to draw attention to the actual behavior. This strategy only works if you know that your child is doing this behavior to get attention, even if the attention is negative. You don’t want to reinforce…

I Feel for You

Carol Greenburg aspieadvocate-ascd.blogspot.com I feel sorry for those who think autistics have no ability to empathize. In my case at least, Asperger’s left me too vulnerable to the emotions of others. When I was a little girl, I smiled until my face hurt. I was nowhere near as delighted as the constant smile seemed to indicate, but I was not miserable either. The unrelenting  smile was, I now believe, the product of rigid autistic thinking, which had led me to a false conclusion that like everything else in my world, there was a correct and incorrect path. Blocks must be stacked in a certain formation, every imaginable question had right and wrong answers. By that admittedly skewed, reasoning, the same principal must have applied to emotion. There was one correct emotion: happiness, which was always expressed with a smile. Other emotions existed, that was irrefutable. Whatever other explanation could there…

Good Cop

Carol Greenburg  aspieadvocate-ascd.blogspot.com   I could have kicked myself for not getting the name of the wonderful New York City police officer who pulled me over the other night. I’m a safe driver for the most part, but Asperger’s sometimes interferes with my perceptions whether I’m standing still or navigating a dark road. It was rainy, I was distracted, and if I can’t even read body language … Well, I was as I so often am, stumped.    Even at my best it’s sometimes unclear to me why people honk their horns at me,  so when the cop driving behind me started waving his hands I didn’t know if  wanted me to get out of his way or whether he was trying to pull me over. Turns out it was the latter. I know this because he used his loudspeaker to announce to all of SoHo that I was to put my car…

An Interview with Carol Greenburg, Autism Women’s Network Regional Director

I met Carol Greenburg last summer at the BlogHer conference in New York. Her confidence, humor, and commentary made her instantly appealing, but her kindness, fierce intelligence, and advocacy skills make knowing her both a luxury and a necessity. She is the executive director of Brooklyn Special Needs Consulting, and serves as the East Coast Regional Director of the Autism Women’s Network. She joined the Thinking Person’s Guide to Autism’s editorial board in January, where she adds her depth of knowledge as an advocate, parent of a special needs child, and an adult on the spectrum. ~Jennifer I’ve joked with you before that you really “have it all.” You’re an adult with Asperger’s syndrome, the mother of an autistic child, and an advocate in the autism community. Do you have trouble switching hats? Do you compartmentalize?  I try to compartmentalize. I think that’s the only way to really do it.…

George Takei on My Mind

Carol Greenburg aspieadvocate-ascd.blogspot.com Please forgive the delay in my addressing the horrors of the earthquake/tsunami in Japan, which are linked to me in ways that will become obvious as you read this essay. I’m diagnosed with Asperger’s Syndrome, a type of autism. Although I am verbal and can express myself in writing, one difficulty I have is gaining enough control over strong emotions to communicate them constructively. Like many Aspies, another difficulty for me is obsessiveness. Autism experts call this perseveration which is one of those pathologizing terms used to describe a quality they’d call persistence in non-autistic folks. I’m used to perseverating and hearing myself described as obsessive. Nothing new there. The topic of my hyper-focus in these past two weeks, however, is new to me: I can’t stop thinking about George Takei. George Takei and I actually go way back, though we’ve never met. I used to edit…

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Carol Greenburg Joins as TPGA Editor

We are so pleased to announce an addition to the editorial team at The Thinking Person’s Guide to Autism; Carol A. Greenburg will join our efforts here as an additional resource and editor. We are honored to have her rich experience and important perspective as part of our team.  We’re thrilled she was able to add TPGA to her very active life, and our community is lucky to have such a great advocate. Please join us in welcoming Carol. **** Carol Greenburg, executive director of Brooklyn Special Needs Consulting, is  a special education consultant and lay advocate in private practice serving the five boroughs of NYC and beyond. Her unique perspective as an adult with Aspergers Syndrome and as the mother of a severely language-delayed  autistic child, informs all of her work. In September, she was appointed the East Coast Regional Director of Autism Women’s Network (www.autismwomensnetwork.com) A frequent speaker at…

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I’m an Embarrassment

Carol Greenburg aspieadvocate-ascd.blogspot.com I don’t have much in the way of shame. I’ve learned enough social skills over the years to not to embarrass friends, family, or even complete strangers as often as I used to, but my Inappropriate Meter isn’t entirely consistent. So hang around with me for a moment or for years and risk blushing. Sometimes people do bad things, so I suppose I can justify my tactless exposure of their misdeeds as a kind of karmic justice. Then again, sometimes people make innocent mistakes and I make everything worse by pointing out their faux pas. I try my best not to be the source of hurt, and try to have faith that most adults are able to forgive whatever role is I play in their discomfort. But I worry about embarrassing kids, in particular my autistic son. Yeah, I know some parents of autistic kids worry about…