Elizabeth J. Grace www.tinygracenotes.com I haven’t seen my friend Eric in years, and we are not in touch right now because our friendship, our communion, is about hanging out together. He’s not much of a talker at all, maybe ten words? and not a writer. (And even if he were a talker, I am heinous on the phone.) Next time I am in his town, and we see each other, it will still be easy to hang out with each other as if we just left off, because we both love to sit in our sea cliff hangout hidden by sea grass and watch the ocean. We like to do this quietly. Eric is on the ball and understands what people are saying and doing. I and some others find this obvious, but not everybody does. For one thing, he knows your name if he likes you, and if he…
Tag: communication
Paula C Durbin-Westby paulacdurbinwestbyautisticblog.blogspot.com I am not a completely nonspeaking Autistic, of course. Many people have seen me speak and some do not even know that I lose speech at times. My loss of speech is temporary, and can last a few seconds to a few hours or the good part of a day. Sometimes it really is the good part of the day, as I often find talking to be exhausting and it’s nice to not have to do it, even if it is because I temporarily can’t do it. The following short video clip is part of what is going to be a longer video. I have about 5 or 6 of the segments made, but need to get to a much faster Internet connection to upload them, and need some more time to edit it all into one video. Here’s for starters. This one was made recently,…
AAC, or Augmentative and Alternative Communication, provides many autistic people with communication options. We keep hearing how some of those same people are discovering new tablet- or app-based AAC options that even better suit their needs. One such person is Nathan, whose mother Lisa Valerio describes him as, “a 9 year old boy with autism who loves playing outside, swimming, jumping on the trampoline, painting, and putting together puzzles. He uses his the LAMP for Words app now to communicate.” Can you tell us a little bit about how you came to be an AAC family? My son Nathan has autism and verbal apraxia, and after many years of struggling to communicate (and intense SLP services) we determined he needed an AAC device — and became an AAC family. What kind of AAC technology has Nathan been using? How did you choose it? When Nathan was younger we started with…
Shannon Des Roches Rosa www.Squidalicious.com My son Leo has passed the eleven and a half years mark. I feel like I’m finally hitting my stride as an autism parent, in terms of accepting Leo on his own terms, and not giving a damn about the imaginary “easier” alternate reality society thinks I’m supposed to pine after. This means I think a lot about the information and attitudes I’d have wanted to jack, Neuromancer-style, straight into my brain eight years ago so I could instantly be the parent Leo needed me to be. And that’s silly — neural enhancements aside — because instant downloads do not equal instant attitude adjustments. There’s often no substitute for experience constructed out of progressive, natural epiphanies. Still, that experience can be altered dramatically by external factors, like consistent exposure to positive attitudes and helpful perspectives; they shape our final outlook as parents and as people.…
Deanne Shoyer www.smallbutkindamighty.wordpress.com Deanne is the mother of gorgeous twin boys, five years old, who are both on the autism spectrum. I’ve read a number of blog posts where the writer describes the ways that strangers or relatives make them feel their parenting skills are inadequate. This post will not be adding to that number. It is about a struggle I’ve had in dealing with some challenging behaviours from Oliver. My reactions to those behaviours led me to conclude (at least initially) that I wasn’t being the best mother I could be. Oliver had been displaying some pretty aggressive behaviour towards Owen: pushing him hard enough so that he would fall over, kicking him (usually once Owen was on the floor) and pulling his hair. The worst incident happened when Oliver pushed Owen off a chair and Owen fell on his head. It got to the stage that Owen…
Lydia Wayman www.autisticspeaks.wordpress.com If I knew what to say, I’d tell you a million little things that I’ve acquired in my brain over the weeks and months — and lifetime. If I could, I’d tell you that I’m so over age appropriateness. You say Disney and American Girl isn’t age-appropriate for me? Well, excuse my language, but I say you can shove it. I would, if I could, ask you what is the point of encouraging age appropriate interests? Is it to make friends? I have many, even more than I can keep track of sometimes. Is it so that people will like me? Hate to break it to you, but people already do like me (not everyone, but, well, obviously, right?). Is it so that I can be normal? And to what end, I would ask? If I’m comfortable with it, you should be comfortable with it, and that’s…
We held a dialogue series last week between parent Robert Rummel-Hudson, author of Schuyler’s Monster and blogger at Fighting Monsters With Rubber Swords; and self-advocates Zoe, blogger at Illusion of Competence, and Ari Ne’eman, President and co-founder of The Autistic Self-Advocacy Network. Readers let us know that they wanted more, and more perspectives, so we’re continuing the series through this week, and original participants Zoe, Rob, and Ari are stepping back and letting other voices have the floor. This week’s first post was from a representative of both parties: Melody Latimer, director of The Autistic Self-Advocacy Network’s Dallas-Ft. Worth chapter, and blogger at ASParenting. You can read the entire series at thinkingautismguide.blogspot.com/search/label/dialogue For those who note that these Dialogues are a challenging and thorny process, and wonder about the usefulness of participation, consider a comment left on Melody’s post by OutOutOut: “I’m tired of the fighting, too. I really am.…
We held a dialogue series last week between parent Robert Rummel-Hudson, author of Schuyler’s Monster and blogger at Fighting Monsters With Rubber Swords; and self-advocates Zoe, blogger at Illusion of Competence, and Ari Ne’eman, President and co-founder of The Autistic Self-Advocacy Network, You can read the entire series at thinkingautismguide.blogspot.com/search/label/dialogue Readers let us know that they wanted more, and more perspectives, so we’re going to continue the series through this week. Original participants Zoe, Rob, and Ari are stepping back and letting other voices have the floor. Today’s post is from Melody Latimer, director of The Autistic Self-Advocacy Network’s Dallas-Ft. Worth chapter, and blogger at ASParenting. -The Editors —- My favorite Autism “quote” is one we all know too well. “When you know one Autistic person, you know one Autistic person.” Given, there are variations to this, but this is the way I like to phrase it. In my world,…
We are going to continue the Dialogues, at least through next week. (The entire series can be found at thinkingautismguide.blogspot.com/search/label/dialogue.) We’ve heard from readers that they’d like to see Dialogues posts from perspectives including self-advocates parenting children with disabilities, late-diagnosed self-advocates, and parents of children with autism. And, as commenter, advocate, and parent Cheri wrote in regards to the Day Five post from Robert Rummel-Hudson: “I imagine that engaging in this dialogue may have been uncomfortable, and I commend every one of you for agreeing to do it. This final post leaves me wanting — hoping — for more. I don’t know about anyone else, but I’m not sensing any closure here.” We don’t have closure. We need to continue the conversation. How? Self-advocate Rachel Cohen-Rottenberg also commented on the Day Five post, with insights as to how she has synthesized and recommends approaching the Dialogues overall (she is not…
We’re hosting a dialogue series this week, between parent Robert Rummel-Hudson, author of Schuyler’s Monster and blogger at Fighting Monsters With Rubber Swords; and self-advocates Zoe, blogger at Illusion of Competence, and Ari Ne’eman, President and co-founder of The Autistic Self-Advocacy Network. Why? We want to encourage constructive conversations about disability. Zoe and Rob disconnected spectacularly last month. If you don’t know the backstory, see Rob’s post, and Zoe’s reaction. Neither is satisfied with the way that scenario played out; they are using this space to attempt a do-over. Dialogues Day One: Zoe Dialogues Day Two: Robert Rummel-Hudson Dialogues Day Three: Ari Ne’eman Dialogues Day Four: Zoe Robert Rummel-Hudson has the floor again today. All the participants — writers and commenters — have our gratitude. Not every exchange has led to greater understanding, but many did, and that could not have happened without you. -The Editors —- The world is…