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Autism: What ERs and Hospitals Need To Know

Photo © ILO | Flickr/Creative Commons [image: Doctor giving a heart exam to a patient on a hospital bed. Both people are East Asian.] Kate Ryan Why I am Writing This I am a professional disability advocate in my mid thirties. I am also autistic and have various learning disabilities/mental health diagnoses. I have always been very lucky in that I live in Massachusetts and so have been able to access healthcare despite the fact that I am very low income.  I was a personal care aide for many years and due to this I developed back problems. In the spring of 2016, they became significantly worse. I tried many, many therapies and medications, including alternative ones. I was eventually diagnosed with an extruded disc and had surgery in January, 2017. Although my surgery was supposed to be a routine day surgery, and all of my health care practitioners knew…

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An Advocate Asks for Acceptance in Autism Research

Photo © Subconsci Productions [image: Instruments on the wall of a doctor’s exam room.] TPGA is observing Autism Acceptance Month by featuring accounts from autistic people about the differences accommodations (or lack thereof) make in their lives. Today, Kate talks about her experience trying to participate in a TMS research study, how distressing the entire scenario was for her because of the way she was treated, and how autism researchers need to better understand and accommodate autistic people if they want more autistic participants in their studies. by Kate I have figured it out, and I kind of feel like a genius. I have figured it out, and it is this: Awareness is people talking to you. Acceptance is people respecting you. Awareness is that high-pitched, baby voice. Acceptance is speaking in a normal tone. Awareness is being invited to the table. Acceptance is making sure that you can reach…