IMFAR 2012: An Update on the ASD DSM-5 Recommendations

May 19, 2012January 31, 2022 by Shannon Des Roches Rosa

Sue Swedo M.D. Chair, DSM-5 Neurodevelopmental Disorders Workgroup An Update on the DSM-5 Recommendations for Autism Spectrum Disorder and Other Neurodevelopmental Disorders We spoke with Sue at length both at the IMFAR Stakeholder’s lunch, and after her IMFAR talk. Any errors or omissions in this summary of her talk are on TPGA. -SR —- The goal of the new DSM-5 is clearer criteria, changing all PDDs (Pervasive Developmental Disorders) to ASDs (Autism Spectrum Disorders). This is group’s thoughts on what they are and are not concerned about. In addition to 11 full time members of DSM 5 task force, they have 2 dozen advisors. It’s been a five-year process. She’s deeply appreciative to all of her colleagues. They never expected to be making headlines, the DSM is a bit dry if you sit down and read it. They were shocked when the headlines became about stealing services from 2/3 of…

Disability

The DSM-V Changes From a Late-Diagnosed Adult’s Perspective

February 10, 2012January 31, 2022 by Shannon Des Roches Rosa

Charli Devnet Charli writes: In view of the firestorm surrounding the proposed changes to the DSM-V criteria for the diagnosis of autism spectrum disorder, an open debate on the nature and scope of autism and what it means to be autistic might be in order. —- I’m not an expert, but I am autistic. All my life I searched for the answer to a seemingly inexplicable riddle, “Just what is wrong with me?” At the age of 54, I was diagnosed with Asperger syndrome. The diagnosis, when I finally acquired one, was not a surprise, not to me nor to anyone who had known me for any significant time. I’m far from a borderline case. No one came up to me and said, “You? We just cannot believe it!” Instead, a number of people greeted my disclosure with the response, “We thought so all along.” Not content to simply have…

Disability

Undeniably Autism: The NY Times and Asperger’s Diagnoses

February 3, 2012January 31, 2022 by Shannon Des Roches Rosa

Sarah MacLeod quarksandquirks.wordpress.com The New York Times recently printed two op-eds questioning the existence of Asperger syndrome. The articles came soon after a flurry of media coverage about upcoming proposed changes to the DSM-V, the newest version of psychiatry’s diagnostic guide. These changes remove Asperger syndrome and PDD-NOS (pervasive developmental disorder — not otherwise specified) from the manual, instead creating one category for Autism Spectrum Disorder. Concerns abound. Will people previously fitting one of the three categories now fall into a diagnostic limbo? Will folks lose services because they don’t fit the definition? At least one study claims that these new criteria may greatly reduced the number of people diagnosed as on the autistic spectrum, although only time will tell. Two op-ed contributors to the New York Times seem to have the answer to this possible upcoming crisis: deny that Asperger’s exists and insist the only autism is the classic,…

Disability

DSM 5 Autism Criteria: Clarifying Impact, Taking Action

January 25, 2012January 31, 2022 by Shannon Des Roches Rosa

Interview with Dr. Gil Tippy Clinical Director of The Rebecca School, Manhattan, New York www.drgiltippy.com How are the DSM criteria for autism changing? From the official site: “A single spectrum disorder [i.e., folding in Asperger Disorder and PDD-NOS] is a better reflection of the state of knowledge about pathology and clinical presentation; previously, the criteria were equivalent to trying to “cleave meatloaf at the joints.” “Three domains become two: 1) Social/communication deficits 2) Fixated interests and repetitive behaviors “[because] Deficits in communication and social behaviors are inseparable and more accurately considered as a single set of symptoms with contextual and environmental specificities.” We spoke with Dr. Tippy about what the proposed revisions to the DSM 5 will mean for Autistics, autism families, and autism professionals. Dr. Tippy also outlined actions everyone in the autism communities can take to prevent these changes from cutting off critical autism services and support. Why…

Disability

At the Dog Park

May 23, 2011January 31, 2022 by Jen Myers

T.C. www.ihavethings.blogspot.com I vacillate on the autism thing, and how it applies to N. I use it around the school, because it is a strap, a grabbing-on point, a way for people to understand my son and–very much more to the point–to justify putting forth time, effort, and especially money to help him. I use it because doctors and therapists have used it to describe him. I use it because it’s the primary disability listed on his IEP. But there are so many ways in which he doesn’t seem, to me, to fit on the spectrum part of the spectrum. I describe him, often, as the triangular peg who not only doesn’t fit in the round hole, but doesn’t look all that much like the square peg, either. And yet. And yet, professionals of all stripes see him on a regular basis, and talk to me about him with concern…