Kris Guin queerability.tumblr.com Photo © World Bank, Creative Commons License [image: Students of different backgrounds and abilities, reading books.] During the questioning phase of Betsy DeVos’s Senate confirmation process for U.S. Secretary of Education, DeVos, a “school choice” advocate, demonstrated a lack of knowledge about, and a lack of commitment to, enforcing the Individuals with Disabilities Education Act (IDEA) — the law that requires schools to provide a free, appropriate education for students with disabilities. DeVos’s ignorance about IDEA has caused many individuals with disabilities and their families to become very concerned about their or their family member’s access to public education, and understandably and rightfully so. Individuals with disabilities and their families rely on robust implementation of laws like IDEA for equal educational opportunities. Stemming from this concern are calls from some to pull children with disabilities out of public education, and then homeschool them. I, and many other…
Tag: education
The specific learning needs of Autistic students are not always met in traditional special education, or even in specialized autism classes or schools. We talked with Susan Walton, founder of the new OASIS school near Santa Cruz, California, about ensuring her autistic son had access to an educational environment that not only helps him learn, but lets him thrive. TPGA: Tell us about OASIS. Who are your ideal students? [image: the OASIS school sign outside an exterior building door.] Susan Walton: OASIS, the Outdoor Autism and Special Issues School, is a new Non-Public School in Freedom, California, which is in Santa Cruz county. We’ve developed a program that we are excited to offer to new students. We serve seriously autistic students between Junior High and school completion. But more specifically, we cater to those autistic students who need a lot of activity. Our students crave movement and need variety. They…
Shannon Des Roches Rosa www.squidalicious.com I had no idea autism acceptance and understanding in the UK were so much more culturally ingrained than in the US. Granted, there is still much work to do, and government cutbacks in housing for people with disabilities continue, etc. But the disconnect was shocking. And, I was told, much of it had to do with the National Health Service covering autistic people’s needs as a matter of course. Families don’t need to worry about paying for autism services; they need to worry about getting their kids and family members and selves appropriate services. As a result, according an American parent friend who lives in Yorkshire, there is much less of the catastrophizing of autism than we see in the States. I witnessed these attitudes and approaches during the National Autistic Society‘s (NAS) Professional Conference 2014 in Harrogate. I saw an effective national autism organization…
Shannon Des Roches Rosa www.squidalicious.com The Autism Awareness, Care, and Training (AACT) school in Accra, Ghana reminds me of my own autistic son’s school here in California. Both are places of peace, calm, and competence—plus the occasional whoop, shout, or “eeeee”—while students and staff radiate not just positivity but confidence. This is because students are encouraged to learn to the best of their abilities, and are appreciated for exactly who they are. AACT is a remarkable place. [image: AACT staff and students seated around a table.] It is refreshing to find an autism school anywhere in the world that focuses on helping its students gain skills and work towards greater confidence in themselves, instead of trying to make autistic kids into non-autistic kids—destroying square pegs by pounding them into round holes (to paraphrase writer and autism parent, Paul Collins). It was a delight to visit AACT, meet and interact with…
I regret that I didn’t give my non-speaking son the opportunities to display an interest in things that I assumed he wouldn’t understand. I regret that my assumptions limited him when they should have been expanding his world.
Karen Bower railman.blog.co.uk I’d always had niggling feelings about Harry, but I remember with absolute clarity the day I knew. We’d moved to the other side of town and, driving home, it made sense to use a different route. Harry lost the plot every time. For hours, he would rage at me. I didn’t understand. Was it the move? The house? His new bedroom? One day, to avoid the otherwise inevitable meltdown, I took the ‘old’ route. Harry was perfectly pleased with this. It had taken me weeks to understand that he had no issue with the move or house (Though, two years on, he still calls it New House). It was taking a different route. Ironically, since then, he’s never had a problem with it. Whatever the problem, he’d worked it out. I knew, right then, I had to work it out too. The time until we got a…
The autism parenting community could use more role models like singer, musician, and writer Colin Meloy. We spoke with him earlier this month about the awesomeness of his son Hank, why it’s so damaging when parents publicly promote negative messages about autism and autistic people, and why autism parents should put their energies into better autism accommodations and resources instead of “fighting” autism. Colin and Hank TPGA: Did you have autism in your life prior to becoming an autism parent? Meloy: No. There wasn’t any, or very little — not in my immediate family. So my son Hank’s diagnosis was blindsiding to a certain degree. But I had also never known autism to be necessarily negative. When I recall my B.A. (Before Autism) era, I hung around with artists and musicians in the Pacific Northwest, fellow introverts and weirdos, and there were certain artistic temperaments that were often socially awkward,…
Jennifer Byde Myers jennyalice.com Jack doesn’t fit the mold. Not the mold for a typical kid, not the one for cerebral palsy, not autism, not ADHD. Whenever we try to “box him up”, another piece of him pops out, unexplainable by a typical convention. I like it that way. I know I didn’t fit into the parameters that were set up for me as a kid, and I do my best to keep growing and changing so I can steer clear of the typical; “what I am supposed to do.” The problem with being outside of the norms is that other people don’t always know how to handle you, or help you, or befriend you, or teach you, or be your doctor, or your therapist. People sometimes become exasperated, or assume less of you, or ignore you. And some of that might happen out in the big bad world, but…
Ariane Zurcher emmashopebook.com All examples are misunderstandings or things that have been said and done to Emma by someone within a school setting. My daughter, Emma will be at your school this year. A few days ago, Emma told me she was “scared to go to new school.” Emma loved her teachers and friends from her old school. So I want to introduce you to her. I cannot speak for Emma, I cannot know if everything I write here is completely accurate, but these are things I have learned over the years, things that are specific to Emma and that may be helpful, at least that is my hope. Sometimes Emma does not look at you when you are speaking to her, but that doesn’t mean she doesn’t hear you. Her hearing is excellent. She may not know how to process what you’ve said or she may not know what…
Does back-to-school make your stomach do backflips? Ours, too. So we asked some of TPGA’s contributors what they wish they’d known — as parents, or as students — about the back-to-school season. Here’s what they shared: Mir Kamin wouldashoulda.com I knew it was okay to press for what my kid needed, but it took me a really long time to learn that it was also okay to admit when it’s time to stop trying to hammer your square peg into a round hole (and go find a square hole). I never in my wildest dreams expected to be a part-time homeschooler/unschooler, and yet it turned out to be a wonderful solution for our family once I gave up on the assumption of “making it work” with public school. Mind you, classroom accommodations provided by my son’s IEP worked for a while … until they didn’t. I’m so glad I finally…