Harriet: A Neurodivergent Film Review

November 20, 2019January 31, 2022 by Shannon Des Roches Rosa

Source: Focus Features [image: Poster for the movie Harriet. A glowing orange-brown background features three Black people, one man and two women, in 19th century clothing. The woman in the center is wearing a wide-brimmed hat and has an unapologetic expression. Below them is a smaller photo of the center woman, in profile holding up at pistol. All-caps white text below her reads, “Harriet”] Maxfield Sparrow unstrangemind.com The movie Harriet (2019) is 125 minutes (two hours and five minutes) long. www.focusfeatures.com/harriet —- The first thing I noticed about the film Harriet was that the showing was sold out. I was eager to see the film and was simultaneously irritated and grateful that I couldn’t get a ticket. Irritated, because it meant buying a ticket for a later showing and finding a way to kill time for a couple of hours. Grateful because Harriet’s story is one everyone should know. Harriet…

Disability

How to Plan Events That Prioritize Accessibility

October 17, 2019January 31, 2022 by Shannon Des Roches Rosa

Color Communication Badges by Button Justice League, on Etsy [Image Description: Three 1.5 inch pinback buttons each with a vivid color, a bold black word and a black shape underneath the text. From left to right: a “Red” button with a octagon, a “Yellow” button with a triangle, and lastly a “Green” button with a circle.] Lydia X. Z. Brown @autistichoya [Note from Lydia: This originally appeared on Twitter as a thread on 4 June 2018, and is an incomplete list of suggestions.] Some tips on access-centered event/program organizing/planning (some are mine; many I learned from other fabulous folks): (1) When you put information about the event online, whether on (a) a website, (b) in email announcements, or (c) social media, only include images if you include alt-text and text-only captions. (2) Don’t rely on online/email/social media to get the word out. Call people too. Many comrades with intellectual disabilities…

Disability

Are Co-occurring Conditions Part of Autism?

August 15, 2018January 31, 2022 by Shannon Des Roches Rosa

Photo © NASA Goddard Space Flight Center | Flickr / Creative Commons [image: Photo of two neutron stars ripping each other apart.] Maxfield Sparrow unstrangemind.com Sometimes when I’m talking with someone about autism it feels like we’re talking about two different things. For example, I’ve had countless conversations that go something like this: “You’re nothing like my child. My child has the serious kind of autism,” they might open with. “Autism is serious stuff,” I respond. “It’s important to take it seriously.” “No, I mean my child has the autism with digestive stuff and physical involvement. The severe autism.” “I have intermittent gastroparesis that has sent me to the hospital multiple times. I have a connective tissue disorder that has caused pelvic organ prolapse. These things aren’t autism.” And it’s the truth: the co-occurring conditions we cope with are not autism; they are the “genetic hitchhikers” that love to travel…

Disability

When Autistic People Have Epilepsy

June 18, 2018January 31, 2022 by Shannon Des Roches Rosa

Photo © Ivo Dimitrov | Flickr / Creative Commons [image: Illustration of a human brain, in profile, made of colorful cogs in various sizes and shapes.] Maxfield Sparrow unstrangemind.com [Content note: This post discusses suicidality, mental health, and death.] In the early 1990s, I was engaged to a man with epilepsy. He had tonic-clonic seizures and he was a big guy, so I was always alert to the possibility of an episode. I knew there were stores we couldn’t shop in, and roads I couldn’t drive down. I caught his body and lowered him safely to the ground more times than I can remember. I guarded him from the pressing crowd of curious onlookers when he came around after a public seizure. And I worried, feeling helpless, when his medication levels were off, and he had seizure after seizure. I can’t know what it is like to have epilepsy or…

Disability

Sometimes Accommodations Aren’t Enough: Autism and Anxiety

April 21, 2016January 31, 2022 by Shannon Des Roches Rosa

TPGA is observing Autism Acceptance Month by featuring accounts from autistic people about the differences accommodations (or lack thereof) make in their lives. Today, John Elder Robison talks about why accommodation is important, yet may not be enough to help autistic people like him with co-occuring conditions such as anxiety. John Elder Robison jerobison.blogspot.com With April being Autism month, the folks at TPGA asked me to write about accommodations. How about anxiety, Shannon asked? Foolishly, I agreed. After thinking about the topic for hours, till smoke dribbled from my ears, I cannot conceive of any accommodation I could request around my anxiety. Photo © John Elder Robison [Image: Close up of water running over a rock in a stream.] For me, anxiety is one of the most disabling aspects of autism, and it’s with me — at least at a low level — most all the time. I am almost…