2011-07-12_15-57-37_248-8557131

Parenting in the Park

arbitrary I took both of my children to the park the other day. It shouldn’t be some sort of big announcement that a mom takes her kids to the park, but I was by myself with my two children, who have very different, needs, wants, and abilities, and I am a chicken. There. I said it. I am a scaredy-cat when it comes to taking my kids out into open, uncontrolled situations by myself, unless Jack is buckled into his wheelchair. He has escaped my grasp so many times, wrenching my shoulder as he goes; there are dangerous situations around every corner, and he is fast. And as mature and amazing Katie is at 5, she really is still a small child who deserves to be looked after on a busy street, or a park… but it is summer, and my children are convincing, so I took them. Katie providing…

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The Costs of Fearing Autism

Ariane Zurcher emmashopebook.com The Tdap vaccine protects against Tetanus, Diphtheria, & Pertussis.  Photo © 2012 Rene Najera I recently spoke with my brother by phone. He was unable to travel. His voice was so raspy, his breathing slow and labored, had I not known it was my brother I was speaking to, I would not have been able to guess from the sound of his voice. He wasn’t able to complete a sentence without pausing to take a breath. It was clear listening to him that the act of talking was incredibly difficult and painful. When we said good bye to each other I was overcome with emotion. My brother was very slowly recovering from pertussis, more familiarly known as whooping cough. Because so many parents have chosen not to vaccinate their children for fear that vaccinations cause autism, whooping cough is on the rise. I’m including some links: here…

Labels, Light, and Love

J. Lorraine Martin cheeselesspizza.blogspot.com “Your son has pervasive developmental disorder, not otherwise specified.” That’s a mouthful to say, let alone hear. It was explained as a type of autism. That was 16 years ago. I did not have the Internet at home.  There was no Google for further research. Dustin Hoffman had provided my only experience of autism in the movie, Rainman. Looking back, the declaration–the actual diagnosing words from a stranger, a neurologist, is fuzzy. What did those letters, PDD-NOS, mean? Could a socially constructed diagnosis tell me who my son would become? When I got home from that appointment, teary-eyed and uncertain, I looked at my son with his large brown eyes, head of blondish-brown ringlets, and cherub face. We had already begun to find our rhythm together.  In our first year together, I intuitively discovered that if I laid him on the floor, and placed my head…

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Reflecting on My Future Self

Jennifer Byde Myerswww.jennyalice.com Grocery shopping this morning,  a mom and her son passed by me in the floral department. She is probably in her 50’s because her son looked about 10 years older than mine… and yes, her boy plays for our team: Autism. Right down to the 6 foot 2 inches of young man flapping his hands next to the strawberries and “oooo–Wheeeeing” in the dairy section. I could tell before the stims though, it’s amazing how quickly I can spot a person with autism who’s in the same part of the spectrum as Jack. When I see another family with a special needs child, I always try to smile — at the child, or the parent, hopefully both, to show that, even though I don’t have a stamp on my forehead or my son in tow, I understand a little bit about their life. I always hope that…

Facing My Fears About Learning

Brenda Rothman mamabegood.blogspot.com I have this image in my head whenever anyone says “learning.” Learning means a teacher standing in front of students, who are sitting at desks, listening quietly to the teacher talk facts, figures, and concepts. Anytime I say “learning,” I think “academics,” by which I mean “readin’, writin’, and ‘rithmatic.” ‘Cause I’m a product of that kind of learning.  From elementary to college to law school, learning was sitting in a room with a large group of people and memorizing. Jeez, the number of things I’ve memorized, the number of meaningless mnemonics.   That’s why I think that the only way a child learns is from school, from an adult telling them facts.  But that means a child is incapable of discovering something on his own. That he can’t explore and figure things out without an adult telling him to do so or telling him what it means.…