This idea that people with intellectual disabilities cannot learn is a very dangerous idea and it leads to us being harmed. I think it is important to autistics with intellectual disabilities that we get the support to learn.
Tag: IACC
Sam Crane [image: A smiling white person with ear- length brown hair, wearing a black suit jacket and a white pearl necklace.] What is the IACC, or Interagency Autism Coordinating Committee, and what does it do? We talked with newly seated IACC member Sam Crane about her role, how the IACC works, its goals, why it needs to broaden its focus beyond causation — and her experience as one of the committee’s autistic minority. The next IACC meeting is scheduled for Tuesday, January 12, and will be webcast live. Community members who would like to submit written comments for the meeting should do so by Tuesday, January 5th. —- TPGA: How would you describe the IACC to someone who isn’t aware of what the IACC is, and what it does, beyond the standard — rather stuffy — description? Sam Crane: The Interagency Autism Coordinating Committee is the government’s attempt to…
As some folks in the autism communities seem to misunderstand the purpose and mission of the IACC — the Interagency Autism Coordinating Committee, we asked recent IACC appointee Matt Carey to talk about why he joined the IACC, what the IACC does, and what he hopes to accomplish as a member. From the IACC member bios: Dr. Matt Carey joined the IACC as a public member in 2012. Dr. Carey is the father of a young child with multiple disabilities, including autism spectrum disorder, and is a frequent contributor to the Left Brain/Right Brain blog and other autism blogs. His writing focuses on reviewing current autism research in an understandable way for the public and he is deeply committed to communicating the importance of getting the science right for autism. TPGA: What is your elevator pitch, in terms of telling people what the IACC is and what it does? Dr.…
Susan Daniels Acting director of office of autism research coordination at NIH (National Institutes of Health) Involved in strategic planning & research at IACC (Interagency Autism Coordinating Committee) —- Dr. Daniels spoke at IMFAR about the IACC and the NIH, on the autism research landscape, and IACC research and data sharing. Any errors or omission are on yours truly. -SR IACC (Interagency Autism Coordinating Committee) IACC background: formed under Combating Autism Act of 2006 (CAA) with the goal of accelerating the pace of autism research, and coordinating it as well. The CAA expired Sept 2011, but has been reauthorized. The IACC consists of Federal and Public members (click photo to enlarge): List of IACC members, new members are red The IACC Mission (from the official site, iacc.hhs.gov) Provide advice to the Secretary of Health and Human Services regarding Federal activities related to autism spectrum disorder. Facilitate the exchange of…
Tom Insel Director, NIMH IACC update, since 2010 NIMH Director Tom Insel IACC is congressionally mandated, via the Combating Autism Act of 2006. Legislation will sunset in September 2011, unless the legislation is reauthorized. IACC has 23 members. It’s a diverse group — federal appointees, parents, autistic advocates, professionals. The IACC mission is to: Provide advice to the Secretary of Health and Human Services regarding Federal activities related to autism spectrum disorder. Facilitate the exchange of information on and coordination of ASD activities among the member agencies and organizations. Increase public understanding of the member agencies’ activities, programs, policies, and research by providing a public forum for discussions related to ASD research and services Strategic plan: Concept is to accelerate research process. Want to bring everyone to the table and agree on priorities. Established goals in seven critical research areas Plan gets updated every year, has 78 objectives altogether 16…