Autistic children only get one childhood, and they deserve properly qualified and properly experienced professional teams. Teams that consider autistic ways of communication, ethics, human rights, and potential harms very carefully indeed.
Tag: non-speaking
Ariane Zurcher emmashopebook.com I’m continuing to research SIBs, which stands for “self-injurious behaviors.” It’s far too complex a topic to tackle in a quick 800-1000 word post. There are a number of topics it seems important to discuss, which all fall under the heading of “self-injurious behavior.” (Feel free to add more in the comments section, this is definitely a work in progress.) I’ve broken these topics down to include: The language we use to describe such actions. The perception (usually of neurotypical parents, caregivers, doctors, school employees, educators and the general public) of what these actions may or may not mean, this is particularly critical when the person taking such actions is partially speaking or non-speaking. The personal experiences of those who have engaged in such actions that may or may not lead to real injury. The experience of those who want to help and/or are in a position…
Paula C Durbin-Westby paulacdurbinwestbyautisticblog.blogspot.com I am not a completely nonspeaking Autistic, of course. Many people have seen me speak and some do not even know that I lose speech at times. My loss of speech is temporary, and can last a few seconds to a few hours or the good part of a day. Sometimes it really is the good part of the day, as I often find talking to be exhausting and it’s nice to not have to do it, even if it is because I temporarily can’t do it. The following short video clip is part of what is going to be a longer video. I have about 5 or 6 of the segments made, but need to get to a much faster Internet connection to upload them, and need some more time to edit it all into one video. Here’s for starters. This one was made recently,…
Amy Sequenzia Amy is a self-advocate who types her thoughts. The poem below is from her recent book of poetry My Voice: Autism, Life and Dreams. Please contact Amy to acquire your own copy of her book. My Voice, My Life Look at me. Go ahead, take a good look. What do you see? Weird? Silly? Pitiful? Can’t do anything? You might feel sorry for me You might pity me You probably think I should be treated like a child. I’ve heard and seen this before. “Can she understand me?” “Does she know what is going on?” “How can she make choices?” I understand your confusion But it is time for me to come out. Let’s just make something clear I am autistic, I am disabled, I have many special needs, I look different; I need help eating, walking, moving around. I do not need help Thinking. That’s what you…
Carol Greenburg, Shannon Des Roches Rosa, and Jennifer Byde Myers www.ThinkingAutismGuide.com Thinking Person’s Guide to Autism editors Carol, Shannon, and Jennifer recently attended an event celebrating the work of Kate Winslet. Kate has a new autism awareness and fundraising book coming out next month called The Golden Hat: Talking Back to Autism. We were told the book is meant to shine “a light on a world very few people understand […] about people with profound autism and the challenges they and their families face every day, as well as all the ‘beautiful potential’ of people with autism.” The event was hosted by Ladies’ Home Journal, and featured Margret Ericsdottir, whose son Keli is the inspiration for The Golden Hat Foundation. (Kate is currently on the cover of LHJ, talking about how she was inspired to create The Golden Hat book and foundation with Margret; Margret is the foundation’s President and…