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How We Autistics Got to Here: Reviewing Steve Silberman’s NeuroTribes

Patricia George-Zwicker www.persnicketypatricia.ca [Image: White woman with dark hair wearing black-rimmed glasses, and intently reading the book NeuroTribes.] When Shannon Rosa contacted me and asked if I’d be interested in doing a guest review for Steve Silberman’s highly anticipated book NeuroTribes: The Legacy of Autism and the Future of Neurodiversity, I excitedly and nervously said yes! Like so many others, I’ve been anxiously awaiting what I hoped would be a game changer for the Autism community and Autistic people. I’ve visited many book stores over the years in search of credible information or stories by people like me, especially stories and information from Autistic women. I often left disappointed and frustrated by the lack of history, compassion, accuracy and the almost non-existent input from actual Autistics like myself, finding instead a minefield of cures, desperation, martyr parents, male-dominated information and — said with respect — books about or by one…

Autism Parents, Self-Advocates, and Shared Concerns

Shannon Des Roches Rosa Let me tell you something that may or may not surprise you: When it comes to public discussions about autism, parent and professional voices tend to dominate, and autistic voices tend to be excluded. While that dynamic is changing, primarily due to autistic advocates’ refusal to be sidelined in stories about their own community, and in part through the many communities that encourage parents to discover, listen to, and respect the experiences of those who have lived autistic lives — autistic voices too often still get dismissed, ignored, or outright disrespected. I’m not begrudging parents of autistic kids the right to tell their own stories from parent perspectives, obviously, being that I’m one of those parents myself. But I do find it unsettling when parent stories mention autistic perspectives only to belittle or reject them, as Anne Spence did recently in her otherwise thoughtful story When…