Knowing Why Is Everything: An Interview With Editor Elizabeth Bartmess on Adult-Diagnosed Autistic Perspectives

Sarah Kurchak The Knowing Why book cover [image: Book cover with a black background, with silhouettes of people of all sizes and a dog, in a rainbow of colors. Rainbow-colored text  at the top reads, “Knowing Why: Adult-Diagnosed Autistic People on Life and Autism.] There are many problems with the ways in which autism is currently seen and represented in the media and public discussion. When the face of autism is still predominantly white, cisgender, heterosexual, middle or upper class boys, it erases autistic people of color, LGBTQA autistic people, and poor autistic people from the conversation and denies them vital supports and resources. It also ignores the fact that there’s an entire segment of the autistic population that spends their entire childhoods and adolescences not knowing that they’re autistic at all. As someone who wasn’t diagnosed until I was 27, I grew up knowing that I was different…

Photo of a person from mid-thighs down, standing on tippy toes, wearing red over-the-knee socks spangled with pink and black swooshes.

Autistic People Move Differently, Too

Dyspraxia is when you have a lot of trouble with motor planning, which is our ability to learn new movements. So it’s not the practicing part of it, it’s the learning part. When you’re introduced to [a new movement], how smoothly can your brain understand what the demands are and get your body to do that?


The Stories We Don’t Tell: My Mom On Raising An Autistic Child And Why She’ll Never Write About Me

Sarah Kurchak and her Mother Jane Kurchak  [image: Cheerfully geeky selfie of the author, a white Canadian woman wearing glasses and also goggles on top of her head; and her mother, a white woman also wearing glasses plus a pinstriped blue collared shirt, tie, and white jacket.] Sarah Kurchak When I’m feeling particularly frustrated with my career, I offer to ghostwrite a memoir for my mom. It’s a slightly bitter, semi-serious joke. I’m mostly taking a shot at the fact that the memoirs that non-autistic parents write about raising their autistic children have a much better shot at getting published and selling than anything that I, as an autistic person, could ever hope to write about autism. But there’s also a little part of me that just wants that payday. (I can’t extend this offer to my dad, because he’s a fellow autist and no one seems particularly interested in…