Undeniably Autism: The NY Times and Asperger’s Diagnoses

Sarah MacLeod quarksandquirks.wordpress.com The New York Times recently printed two op-eds questioning the existence of Asperger syndrome. The articles came soon after a flurry of media coverage about upcoming proposed changes to the DSM-V, the newest version of psychiatry’s diagnostic guide. These changes remove Asperger syndrome and PDD-NOS (pervasive developmental disorder — not otherwise specified) from the manual, instead creating one category for Autism Spectrum Disorder. Concerns abound. Will people previously fitting one of the three categories now fall into a diagnostic limbo? Will folks lose services because they don’t fit the definition? At least one study claims that these new criteria may greatly reduced the number of people diagnosed as on the autistic spectrum, although only time will tell. Two op-ed contributors to the New York Times seem to have the answer to this possible upcoming crisis: deny that Asperger’s exists and insist the only autism is the classic,…

Love, By Any Other Name

Sarah Macleod quarksandquirks.wordpress.com findingmygrounduu.wordpress.com aspergersathome.com “I love you,” I’d say. “I love you, too,” he’d reply, often snuggling into me speaking the sentiment with his body as much with his words. It’s been over two years since we’ve shared that exchange. Two years — perhaps three — since I’ve heard Bryce, my son with Aspergers, now 10, tell me he loves me. I’d be lying if I said it didn’t hurt. If I said that it was just words and that I don’t care about the words, my nose would grow like mad. Truth is, I know he loves me, but I ache to hear him say it again. On a recent night around the dinner table during a visit with my mother, the subject of love arose. Bryce pronounced, “I don’t love anyone.” Now, my mom is hip to the blunt mannerisms of my Aspie son, so she didn’t…

Patience, Awareness, and Justice

Sarah MacLeod quarksandquirks.wordpress.com findingmygrounduu.wordpress.com During announcements, my heart dropped. The service leader announced, “Remember that at noon, we have our congregational meeting about the accessibility improvements to the church.” To be clear, I completely support the church’s improvements plan and the capital campaign required to bring them about.  Armed with my knitting, I knew I’d get through the potentially too-long meeting to put these issues up for congregational vote.  While the meeting may be tedious, it’s truly democracy in action, and the improvements are necessary. Our church is built on four different levels, connected only by stairs.  We’re without an elevator (action item number one on the list), accessible bathrooms (item number two), and many other amenities that would make our facility the accessible building it should be.  It’s an old building (the meeting-house is 160 years old) with numerous additions made over many years, resulting in a markedly unwelcome building for those…

Reading for Answers

Sarah MacLeod quarksandquirks.wordpress.com findingmygrounduu.wordpress.com My younger son had a rocky start, with a changing set of labels. At two months, it was colic. At 12 months, he was a “fussy baby.” By four, hypontonicity, sensory processing disorder, convergence disorder, and possible PPD-NOS entered the scene. At six, a psychologist evaluated his cognitive skills and “profound giftedness” joined the party. At nine, he returned to the psychologist for treatment for anxiety and tantrums. Recently, at the end of three frustrating months, the psychologist added Asperger’s syndrome to the list. We — his father and I — had known for years that he was an unusual child. From the start, I scoured bookstores and libraries, searching for answers to or at least a name for what made my younger son so uncomfortable in the world. The answers had to be somewhere in print, I figured. My bookshelf, computer, library card, and I…