An Autistic Patient Uprising Is Happening Now
How one autistic mother’s pursuit of truth is part of a broader shift toward patient-led accountability, ethics, and reform.
services
Autonomy First! Accessing Good Supports Without Sacrificing Your Independence
We’ve all heard or experienced horror stories about accessing services and supports. Often the idea of receiving services for people with intellectual and developmental disabilities (I/DD), including autism, conjures up images of institutions—visions of Willowbrook. Or, ideas of what is “optimal” for us look like segregated lives, or “intentional” communities where the true intent is
How Lack of Accommodations Can Thwart Anxiety and Mental Health Services
How many anxious people are not getting helped because access to mental health services is blocked by the lack of accommodation for the very issue that brings them seeking services in the first place?
Successful Community Living for People with Developmental Disabilities
Clarissa Kripke, MD, FAAFP odpc.ucsf.edu In this important talk for anyone concerned about their, or their child’s, long-term living arrangements and supports, Dr. Clarissa Kripke explores progress made in community living for people with developmental disabilities. She explains how California’s Lanterman Act has been enormously successful by establishing an entitlement to community-based services and supports
We Do Not Cross the Line
Jennifer Byde Myers jennyalice.com Just after the recent murder of Alex Spourdalakis, yet another parent has attempted to murder her autistic child. Services to help families are not available to the degree they are needed, often leaving parents of children with intense needs feeling abandoned, depressed, suicidal and, in some cases, homicidal. I just sincerely
Congressional Autism Hearing Recap
The stated goals of yesterday’s Congressional Oversight and Government Reform Full Committee Hearing: “1 in 88 Children: A Look into the Federal Response to the Rising Rates of Autism” were to “…get a clearer picture on what is being done, what questions still need to be answered and what needs exist for those children, adults
Two Stories: Autism’s Financial and Racial Limitations
Kerima Çevik theautismwars.blogspot.com Several years ago, I attended a meeting of parents and care providers to discuss the lack of county services available for their loved ones on the autism spectrum. At the meeting, an African American medical professional told me something that still gives me pause: “Autism is a disability for the rich,” she
DSM 5 Autism Criteria: Clarifying Impact, Taking Action
Interview with Dr. Gil Tippy Clinical Director of The Rebecca School, Manhattan, New York www.drgiltippy.com How are the DSM criteria for autism changing? From the official site: “A single spectrum disorder [i.e., folding in Asperger Disorder and PDD-NOS] is a better reflection of the state of knowledge about pathology and clinical presentation; previously, the criteria
Autism Spectrum Disorders and Physical Therapy: The Motor Connection
Dr. Joni Redlich, DPT www.kidpt.com Movement is an integral part of our social, emotional, and physical lives. A 4-month old excitedly kicks her arms and legs in response to the funny face dad makes, so he does it again. An 8-month old will crawl to retrieve her favorite rattle, shake it to hear the sound
Unfriendly Consequences: What Competition for Limited Resources Does to the Autism Community and Autism Families
Autism and Oughtisms Autism and Oughtisms What happens to a community of people facing the same challenges, forced to compete for limited resources (particularly government resources)? The effects I’ve seen at a local level – here in New Zealand – appear to be replicated overseas, according to what I’ve seen in debates and conflicts in