Shannon Des Roches Rosa www.squidalicious.com Content note: this article discusses murder, disability, and mental health. There is a horrifyingly typical coupling of devotion with murder, whenever disabled people are the victims. A recent example is Ruby Knox, an autistic young woman, who was murdered by her mother Donella, in Blenheim, New Zealand. Donella drugged Ruby, then suffocated her. Both the reporting and the judge on the case portray Donella as a “loving mum who was driven to kill her daughter.” I’m here to say: Fuck that. I need you — and judges and reporters everywhere — to understand that, however difficult it may be for families to support their disabled loved ones, murder is never excusable. There are always other options. Always. That last message is especially important when you consider that disability-related filicides like Ruby’s are more common than the occasional high-profile story might have one suppose — according to Julia Bascom…
Tag: Shannon Des Roches Rosa
Photo © Bobby Wade/Flickr [image: White woman with long brown hair and glasses, giving a presentation at a TEDx autism conference.] Our editors Carol and Shannon are spending the latter half of this week at IMFAR, the International Meeting for Autism Research, which is May 11 – 14 in Baltimore, MD. If you’re going, say hi! You can also follow us on Twitter at @ThinkingAutism, @ShannonRosa, and (Carol) @AspieAdvocate. IMFAR has improved a lot: We are glad to see the annual conference welcome increasing numbers of autistic speakers and attendees, so that autism researchers can listen to the people whose lives they are studying (and ideally trying to benefit), and vice versa. But since our editorial roles include being autism research ethics gadflies, we have to note that IMFAR is still mostly about the medical model view of autism and disability (curing and fixing), rather than the social view (understanding…
–> Shannon Des Roches Rosa Senior Editor, Thinking Person’s Guide to Autism Why do some autistic children and teens become self-injurious or aggressive? How can parents and caregivers help the kids in their care get through meltdowns safely, protect the kids themselves as well as family members, and anticipate and avoid future incidents? This was the topic of a recent workshop I moderated at Support for Families of Children With Disabilities, in San Francisco, with speakers Dr. Clarissa Kripke, Brent White, and Lindsey Anderson. The presenters covered a lot of material, which we’ll publish here in three parts: Overview (Shannon Des Roches Rosa) Medical and trauma-informed practices (Dr. Clarissa Kripke) Autistic professional and personal insights (Brent White and Lindsey Anderson) The workshop was well-attended (standing room only), engaged and productive. One of my favorite parts was that, after a short explanation of why “flappause,” or flapping one’s hands for applause,…
Shannon Des Roches Rosa, with Carol Greenburg, Patricia George, and Christine Langager The disability and empowerment-themed website The Mighty recently published a post called Introducing: Meltdown Bingo, and sparked an actual Internet meltdown. In the post (since retracted by The Mighty’s editors), a parent used the popular Bingo Card meme to detail challenging aspects of their autistic child’s meltdowns. The online backlash from autistic and disability activists was understandably swift and strong, underpinned by a history of those activists’ dissatisfaction with The Mighty coupled with dismay over yet another hijacking of autistic children’s most vulnerable and misunderstood moments justified as parenting “honesty.” But here’s the thing most backlash commentary missed or ignored: The mother who wrote the post is autistic. Anyone who clicked on the author bio for the original Meltdown Bingo post would have read the following: “Christine is an adult-diagnosed autistic mother to autistic Cameron, 8.” Also missing…
San Francisco Bay Area Locals: Please come to a free workshop at Support for Families of Children With Disabilities, in San Francisco, on Saturday, January 9th. When Autistic Children Are Aggressive or Self-Injurious: Best Support Practices Photo © Akuiliu, on Flickr [Image: Upset-looking East Asian child] Why do some autistic children and teens become self-injurious or aggressive? How can parents and caregivers help the kids in their care get through meltdowns safely, protect the kids themselves as well as family members, and anticipate and avoid future incidents? Come hear from parents, professionals, and autistic people themselves about best practices for understanding and supporting autistic people during these kinds of crises. There will be a Q&A after the presentations. Speakers include: Dr. Clarissa Kripke from UCSF, talking about overlooked medical and health triggers, as well as meltdown support strategies. Brent White and Lindsey Anderson from Berkeley’s Ala Costa Adult Transition Program,…
Shannon Des Roches Rosa www.ThinkingAutismGuide.com twitter.com/shannonrosa TPGA has made a point of attending IMFAR, the annual International Meeting for Autism Research, since 2011. We believe it is important to go beyond learning about the current state of autism research by talking with and listening to researchers directly — and not just about current research, but about how research can better benefit autistic people, in addition to those who love, live, and work with autistic people of all ages and abilities. Here is what we learned and observed at IMFAR 2015, which took place last month in Salt Lake City, Utah. Note that the IMFAR conference itself — with scores of presentations and hundreds of posters — is overwhelming, and we only got to see part of what was actually presented and discussed in the full conference. We also live-tweeted several sessions from the conference, and compiled that coverage at Storify.…
Dear Robert Krulwich, Jad Abumrad, and the Radiolab team: Your autism-focused episode Juicervose has destroyed my faith in Radiolab and the integrity of its reporting. Rubbernecking about autism and autistic people is usually the realm of inexperienced journalists, but you don’t have that excuse. In fact, you have a MacArthur “genius grant” recipient on your team specifically because of your focus on “bringing new ideas to people.” So why did you choose to amplify the same hurtful, tired autism stories the media always airs? And why didn’t you show more compassion for autistic people themselves? Sure, you talked to Temple Grandin. With respect to both her and your team, every person on the planet has heard what Temple Grandin has to say about autism. Her ideas are not new ideas. And yes, you talked to Owen Suskind. It was wonderful to hear his voice and his perspectives. I am sincerely…
One week ago, TPGA editors Shannon Des Roches Rosa, Jennifer Byde Myers, Emily Willingham, and Carol Greenburg spoke as a group at the University of San Francisco’s Developmental Disabilities Conference. It was an honor and a privilege to talk with a group of (mostly) professionals about how we use the power of social media to support our principles and TPGA’s mission, including autism acceptance and civil rights for people with disabilities, evidence-based approaches to autism supports and research, and debunking autism myths and misinformation. TPGA editrixes, post-UCSF session Shannon, who opened the discussion, is TPGA’s senior editor, and the parent of an autistic child. Thinking Person’s Guide to Autism (TPGA) is a book, a blog, and a community. We aim to support autistic people and their families, counter negative media messages and autism stigma, and provide positive autism attitude role models. We created TPGA in 2010 to be the resource…
Shannon Des Roches Rosa www.squidalicious.com [image: White boy with short brown hair, seen from behind, walking on a stone path in a Japanese rock garden.] You don’t want to be on the wrong side of history, do you? That’s a particularly important question to ask yourself regarding autism acceptance. It’s important for you to accept, and then help other people understand, that autistic people like my son are your fellow human beings, with your same inalienable rights to live happy and pity-free lives. That whatever their needs and abilities, autistic people are not “less” than other people. You can start small with Autism Acceptance if you need to, start on the personal scale — taking the time to understand, for example, that my autistic son Leo doesn’t like restrictive shoes, and prefers Crocs — it’s a sensory thing. Why would I put him through the trauma of wearing other shoes?…
We’re excited to let you know that Thinking Person’s Guide to Autism is coming to Kepler’s Bookstore in Menlo Park on Tuesday June 25th at 7:30 pm. Editors Shannon Des Roches Rosa, Jennifer Byde Myers, and Emily Willingham, along with contributors Laura Shumaker and Susan Walton will be on the panel. We’ll do a bit of reading, and have plenty of time for questions and answers. We’re hoping there will be other Bay Area contributors at the event as well. If there is anything you’d like us to share at the reading please leave a comment below and we will do our best to cover the subject. Thank you for your continued support of Thinking Person’s Guide to Autism. -The Editors Share this event on Facebook If you are interested in having someone from Thinking Person’s Guide to Autism speak at your event or local bookstore please contact us at…