Autism: When the Right Message Goes Mainstream

Jennifer Byde Myers jennyalice.com We want April — Autism Acceptance Month — to matter, to help further acceptance and understanding of autistic experiences, happiness, and rights for autistic people of all ages and abilities. We will be publishing Autism Acceptance posts and pictures all month long. -TPGA Editors When we first started Thinking Person’s Guide to Autism (TPGA), our goal was to put, all in one place, the best information from autistics, parents of autistic children, and the professionals who serve our communities. We always felt it was key to deliver this information with frankness and with honesty, especially regarding autistic struggles, and challenges with aspects of education and parenting. We did not want to seek pity, or place blame. Instead, we sought to highlight neurodiversity as part of the fabric of humanity, part of what it means to be human. We wanted to present a variety of perspectives about…

Book Review-And Straight On til Morning : Essays on Autism Acceptance

And Straight On til Morning : Essays on Autism Acceptance edited by Julia Bascom Published by the Autistic Self-Advocacy Network  We want April — Autism Acceptance Month — to matter, to help further acceptance and understanding of autistic experiences, happiness, and rights for autistic people of all ages and abilities. We will be publishing your Autism Acceptance posts and pictures all month long. If you want to participate, contact us at thinkingautism at gmail dot com. -TPGA Editors In keeping with Autism Acceptance month, there probably isn’t a more appropriate book to share than And Straight On til Morning : Essays on Autism Acceptance, which contains the work of wonderful Autistics and allies, including Zoe Gross, Shain Neumeier, Lydia Brown, as well as Kassiane Sibley, and Shannon Des Roches Rosa from TPGA.  Julia Bascom edited the collection, and in its current  format, an ebook, it is available quickly, and very…

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Bickering (Autism) Siblings and Broken Hearts

Shannon Des Roches Rosa  www.squidalicious.com We don’t ever leave our youngest daughter Mali alone with her twelve-year-old brother. Leo’s autism may affect how he speaks and communicates, but he remembers very clearly that until he was four years old, there was no little sister and he was Mommy’s baby, and he has no problem expressing his antipathy towards his smallest sibling. Understandably, Mali is not a Leo fan. As for me, I worry that these two children I love so fiercely might hate each other. And that breaks my heart. I try to help Mali see the things I love about her brother — his sweetness, his impishness, his pitch-perfect singing — while also trying to cultivate her empathy for the challenges that come with his kind of autism. It’s not easy; she’s got a spitfire, conclusion-craving personality; she needs things explained and decided on the spot. Plus, she’s eight.…

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How iPads & Tablets Can Support Autistic Learning & Play

Shannon Des Roches Rosa www.squidalicious.com These iPads have been around for almost three years now, which is rather mind-boggling. Even though tablets no longer attract sideshow-level reactions with every mention, they are still wonderful tools for many autistic kids and adults, and exciting new approaches and apps keep emerging. I teach autism and iPads workshops all over the country (including a class at San Jose’s Morgan Autism Center on February 9th); the following is a general outline of what I’ll discuss, and my current take on iPads and autism. Tablets: Tools, Not Miracles My initial response to seeing my autistic son kick butt using an iPad was elation, 
because he was instantly able to learn and entertain himself independently. However, tablets are not for everyone. Evaluate tablets and apps before buying. Tablets encourage presuming competence by enabling visual and alternative communication and learning. Competence expressed and recognized increases self-confidence. Benefits:…

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When Strangers Don’t Care About Accommodating Autistic People

Shannon Des Roches Rosa www.squidalicious.com Honestly, I don’t give a fig about strangers judging how I parent my autistic son. I know I’m doing my best with all three of my kids, and am also constantly learning from my mistakes. Plus Leo has the same right to be in public as anyone, as long as (also like anyone) he’s not being disruptive. If he’s having a hard time, there’s always a good reason, and we move on. Riding the Ducks, with our Duck Quackers [image: My three kids using yellow “quacker” whistles. Leo’s sister is helping him with his.] What I do care about is how strangers respond when Leo needs accommodation. And a few months ago, when I reluctantly pulled out the autism card to ask if Leo could jump the queue for a public restroom, a stranger lectured me on how autism did not justify my request, and…

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2012 at Thinking Person’s Guide to Autism

2012 was an eventful year at Thinking Person’s Guide to Autism: Our book drew much acclaim, three new editors joined our team, we featured more than 30 profiles of Autistic kids and adults for April’s Slice of Life series, we went to the International Meeting for Autism Research in Toronto, our Facebook community hit and surpassed 10,000 members while remaining a nexus for thoughtful autism news and conversation, and we were cited and our editors were interviewed frequently — especially whenever autism made headlines. We also continued to publish thought-provoking and educational essays and interviews on this site, and all enjoyed and learned from the ensuing discussions. The 15 TPGA posts (with excerpts) below were 2012’s most popular — meaning hotly debated and/or praised — and give a sense of what we in the Thinking Person’s Guide to Autism community had on our minds these past twelve months. Thank you…

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How Apps Can Support Social Skills

Shannon Des Roches Rosa www.squidalicious.com www.blogher.com Sometimes I think social skills apps are redundant, since iPads are themselves such social magnets. These tablets can motivate people of all abilities to interact, and give them a common ground for communicating. But as social skills are multi-faceted, and since different folks need support in specific areas, I am grateful for the variety of apps that allow me to turn my son Leo’s iPad into a custom social skills springboard. Leo doesn’t always use apps developed specifically for fostering social skills. Instead, he relies more on apps created for communication and labeling purposes. Leo has a strong social urge, but he’s often overwhelmed by the factors involved — simultaneously processing names, body language, and words. He appreciates apps that simplify the socialization process, streamline his choices, or help him learn to identify people consistently. Leo needs practice and options for learning to recognize…

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Talking About Autism, Disability, & Hygiene

Shannon Des Roches Rosa www.squidalicious.com Most parents fret about their kids’ hygiene and how it is affected by factors like circumcision, tooth brushing, or toilet training. Said fretting escalates when the kids in question have a disability, but hygiene doesn’t have to be the skunk cabbage in the parenting bouquet — not if parents do their best to understand why hygiene can be complicated, take cues from self-advocates with insights parents and professionals cannot provide, encourage self-care, recognize that not all hygiene needs will be rooted in disability, and help make self-care part of a routine. Circumcision is a standby topic in parenting circles. Arguments both for and against the snip invoke culture, religion, sensation retention, or wanting Daddy to have a penis twin. But few mention the possibility of conditions like cerebral palsy or the fine motor challenges that often accompany autism, and how those affect uncircumcised penis care.…

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Understanding Autism Acceptance: A Parent’s Perspective

Shannon Des Roches Rosa  www.squidalicious.com Sometimes I think I like sameness more than my son does. That’s why a persistent hindrance to increased independence for autistic kids like my son Leo is parents like me overlooking opportunities for self-care and competence. Sometimes this happens because we find it quicker and easier to take care of breakfast preparation or our kids’ tooth brushing ourselves, sometimes because in our day-to-day rush we forget to check in and see if new skills have emerged. It takes effort and vigilance to give Leo the chances he needs to demonstrate competence. Like this past weekend, when Leo asked me for mango juice. I was about to pour it for him, but instead stepped back and asked if he wanted to pour it himself. Which he did! He even put the lid back on the carton (a twisting/screwing motion) with one hand while drinking his juice…