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Interview: Dr. Sally Ozonoff on the MIND Institute Infant Sibling Study

Dr. Sally Ozonoff is the Principal Investigator of the Infant Sibling Study Team at the UC Davis MIND Institute. We talked with Dr. Ozonoff about her autism research work, how the Infant Sibling Study operates, and what the study does and does not mean. This interview took place before yesterday’s CDC announcement about autism prevalence rates, but Dr. Ozonoff’s team had some similar findings within their own study, especially regarding earlier/more intense scrutiny leading to earlier and increased rates of autism diagnoses. How did you become involved with the Infant Sibling study? Is it in line with your previous areas of research? I have always been interested in diagnostic issues within the autism spectrum. I began my work in the autism field researching individuals with Asperger syndrome, trying to understand if and how they differed from individuals with autism. This was back in the early 1990s, when Asperger syndrome had…

jamesandlindsey-8687849

Autism, Siblings, and the Art of Unconditional Love: An Interview With Lindsey Nebeker

Lindsey Nebeker is one of our community’s most visible activists, speaking out on topics ranging from autism and dating in Glamour magazine, to the need for more safety and support measures for individuals with autism at a recent Interagency Autism Coordinating Committee meeting. Lindsey was diagnosed with autism at the age of two, and began to speak around age four. She grew up in Tokyo, Japan with her younger brother James, who shares the same diagnosis but faces more challenges. She recently spoke with TPGA about her experience growing up as one of two siblings with autism. Tell us a little bit about yourself. How old are you, where do you invest your greatest energies, and when did you first receive your autism diagnosis? I am a pianist/songwriter, photographer, public speaker, and advocate currently residing in the Washington, DC metro area. As a woman in my late twenties, I have…

Little Songbird

Kris Robin Today we went by the dress store to pick up my daughter Emily’s pageant dress. I had chosen a dress shop close to where we lived, though to call it a shop would have been a bit of a stretch. It was a storage building attached to the side of a trailer. Off to the side stood the Woodrow Wedding Chapel – yet another storage building where happy couples could walk down the aisle after renting a wedding dress. An orange tabby was asleep on a bale of hay by the front door. A little girl’s white dress was draped over the bushes in the sunshine. It really didn’t look like the place to rent a pageant dress, but I had been lucky enough to find one for Emily there last week. With shoes, however, I had no luck anywhere. I had to wonder at my rotten luck…

Purple Sucker

Dawn Comer What happened next? Mommy, what happened next? she begs, wanting for story, an end. But I have no context, know no story. Morning but my daughter’s eyes flit, seeking shadows in sunlight. Mommy, what happened next? Morning and my eyes stare, settling into love-heart pillow, bright pink against dull blue carpet.  Cast off casualty of nighttime. And then I understand. Lucy, did you dream? Did you see  a story in your sleep? Baby crying, Lucy says. Baby crying in daddy’s office. Purple sucker in daddy’s office. And then, Elliot angry. Baby crying. And me not needing to hear Lucy but still she says her name as if it is not even hers. Lucy baby crying in daddy’s office. Elliot angry. Lucy baby have purple sucker. Mommy! Mommy, what happened next? Her first shared dream an ache in my gut. I have no words, no end, no power, no…

All His Base Are Belong To Him

Susan Senator www.susansenator.com When Benj was a very little guy, he used to sit on my lap at the beach, holding on tight to some little palm-sized truck or being. He did not like to move from there. I was his base. He took a long time to get himself into the sand, and even longer to play in the waves the way he does now. It worried me, of course.  All the other little kids were sitting on their fat, puffed-up diapers and digging, crying, yelling, laughing, pointing. Benj could do all of it; he just had to do it from my lap. I tried pushing him off, prying him loose, setting him down, showing him how to play, but generally, he preferred my cushiony self. Sweet Baby. But oh, God, was I worried. He wasn’t like Nat, but he wasn’t like Max. So what was he? He was…