IMFAR 2012: On Communicating Autism Science

Speaker Dana Marnane and TPGA editor & self-advocate Carol Greenburg This session was geared towards scientists, regarding why it makes sense to learn how to communicate autism science; how to write a a great article, and how to get your quotes in to articles. Alison Singer of the Autism Science Foundation put together and chaired this panel. Any errors or omissions are on us. -SR The speakers: Jane Rubinstein: Media Training 101 Karen Weintraub: Working with the Press Dana Marnane: Communicating Directly with Families and Other Stakeholders JANE RUBINSTEIN, Rubenstein and Associates Data show that only 58% of academic scientists are involved in media outreach — 78% of women, ~40% of men. 5% of participants created more than 50% of media quotes. Scientists queried cited lack of time as main barrier, but large number felt lack of skills in media relation as primary barrier to media participation. What is PR?…

Squag: A Social Media Space for ASD Tweens & Teens

Sara Winter Squag is a new social media space with a difference, developed for tweens and younger teens with autism.  The user (the tween, called a Squagger) begins using Squag by interacting with his or her own “Squagspace’” — designed to look like a room — with content (photos, videos, and messages added by parents.  Eventually, when a particular Squagger is is ready (according to parents) one Squagger is matched with another, and they can interact.  The interaction are always only between two Squaggers.   The platform is now in beta user testing, which means the ability to connect pairs of  Squaggers is not yet enabled. I saw a Squag announcement, and was intrigued by the concept, so arranged an interview with Sara Winter, Squag’s founder–LD What inspired you to create SquagTM? The idea came to me two years ago when I was on the playground with my nephew…

Supporting and Promoting The Thinking Person’s Guide to Autism

Some of you have asked how you can help us promote The Thinking Person’s Guide to Autism. Here are three simple actions: Follow our Twitter stream at @thinkingautism and retweet our posts. We publish a new essay every weekday, between midnight and 3 AM PST. Join the conversation: comment on our posts! We’ve had some great discussions, and look forward to more. Visit our Facebook page. You can also install “like” code for our Facebook page on your blog, as we have in this blog’s right-hand sidebar.  Email us and we’ll send you the code. Thanks so much, Shannon, Liz, Jen, & Emily Editors, The Thinking Person’s Guide to Autism