Mental Health and Autism: Why Acceptance Matters

February 18, 2018January 31, 2022 by Shannon Des Roches Rosa

Photo © Mariana Zanatta | Flickr/Creative Commons [image: Hand-drawn black-and-white outlined block letters spelling “anxiety” on a background of “anxiety” written repeatedly in black & filling all space.] Christine Motokane www.workingthedoubleshift.com It is well known that individuals on the autism spectrum are likely to have co-occurring mental health issues such as depression and anxiety. However, mental health is a less-discussed topic surrounding autism, compared to behavior and social challenges, etc. As an autistic young adult with anxiety, I can give personal insight on this high prevalence. A big part of our susceptibility to issues like anxiety has to do with how we were slowly socialized, either implicitly or explicitly, to believe that an autistic lifestyle is something that is defective and therefore needs fixing. A recent Independent article sums up the strong link between lack of autism acceptance and the development of mental health disorders in autistic people: Research shows that lack…

Newborn baby on its belly, seen from above, lying on a fuzzy mat on an even bigger fuzzy bear cushion.

Autism

Parents: Let’s Talk About Grief and Disability

February 14, 2018September 11, 2024 by Spectrum Disordered

During my 15 of autism activism, I’ve seen tremendous positive change in what people—including parents—believe about autism, but this “grief” crap JUST WON’T DIE.

[[image description & transcription: A full-color hand-drawn comic strip. The first row contains two panels. The left hand panel has a green background. A blond white person on the left is talking and maintaining eye contact with the olive-skinned person with long dark hair on the right. Black all-caps hand-lettered text on a white background above their heads reads: “For allistic people (non-autistic) eye contact is a way of connecting with others in conversation.” The right hand panel has a blue background. On the left A black person with a natural hairstyle is looking down, with an uncomfortable expression on their face while on the right a white person with long straight hot pink hair and bangs has their eyes closed tightly. Black all-caps hand-lettered text on a white background above their heads reads: “For autistic people, it’s different. Eye contact is uncomfortable and invasive.” The second row is a black rectangle with white hand-lettered all-caps text reading: “When we look away, it doesn’t mean that we are not listening. We are not disrespecting you.” The third row is one large panel. It is a close up of the eyes and nose of a white person with straight long purple hair and bangs, with eyes wide open. Black all-caps hand-lettered text on a white background at the top of the panel reads: “If we try and make eye contact with people, it can totally distract us from what is being said because of how horrible it can feel and the effort involved.” Red-outlined word bubbles around the edge of the panel, in black all-caps hand-lettered text on a white background, read: “Keep looking” “Having I looked too much?” “This hurts” “Am I doing this right?” “I have no idea what they’re saying” “Can’t do this” and “I feel so vulnerable” All caps hand-lettered black text under the panel reads: “© Beth Wilson 2017”]

Autism

Eye Contact

January 17, 2018July 1, 2022 by Beth Wilson

There are good reasons why many autistic people avoid eye contact. And “when we look away, it doesn’t mean that we are not listening. We are not disrespecting you.”

The third row is one large panel. It is a close up of the eyes and nose of a white person with straight long purple hair and bangs, with eyes wide open. Black all-caps hand-lettered text on a white background at the top of the panel reads:

“If we try and make eye contact with people, it can totally distract us from what is being said because of how horrible it can feel and the effort involved.”

first-trans-solidarity-rally-and-march-washington-dc-usa

Disability

Under a Double Rainbow: Autism and LGBTQIA+

November 3, 2017January 31, 2022 by Shannon Des Roches Rosa

Photo © Ted Eytan | Creative Commons/Flickr [image: Multiracial crowd rallying with flags and signs behind a banner reading “Trans Solidarity against transphobia for justice”.] Maxfield Sparrow unstrangemind.com Ten years ago, I wanted to write a paper about autism and gender issues for a gender and sexuality conference at which I had previously presented. I started the research, then dropped into a depression after realizing how little material was available, and that the existing research about autism and gender was both dismal, and erasing. The medical journals talked about transgender autistic children as if their gender issues were delusions, mere symptoms of their autism. I never wrote that paper. Today, not only is there good autism information available, but the “double rainbow” of being both autistic and LGBTQIA+* is just beginning to be more accepted and understood. We have a long way to go, but people are beginning to understand…

Disability

Helping Autistic Children Understand Death and Dying

October 1, 2017January 31, 2022 by Shannon Des Roches Rosa

Maxfield Sparrow unstrangemind.com Photo © Benedic Belen | Flickr/Creative Commons [Image: Black-and-white photo of an Asian woman comforting a small crying child who is wearing a tiara, and has their hands over their face.] The Thinking Person’s Guide to Autism asked Autistic adults to fill out a survey about death and dying to create a resource for people who need to explain death to Autistic children. The response was tremendous—in less than a week the survey had 50 responses, mostly from Autistic adults. What follows is a summary and analysis of the responses. We hope it is useful to you, your child, your family, your clients, and your students. Please note that some of the responses discuss difficult material, including suicide, and suicidal ideation/threats. Bullet Point Summary Autistic adults were surveyed about death and dying. Most learned about death through observation of people, animals, and plants. Learning about death was…

abcs_of_aut_acceptance_ebook_cover3_large-4673978

Disability

Why Everyone Should Read The ABCs of Autism Acceptance

May 8, 2017January 31, 2022 by Shannon Des Roches Rosa

Patricia George www.persnicketypatricia.ca The ABCs of Autism Acceptance [image: Book cover, with white text reading “The ABCs of Autism Acceptance” on a background of multicolored representations of letters of the Roman alphabet, above black text on a white background, reading, “by Sparrow Rose Jones.”] I’ve been an avid reader my whole life, so when I was asked to review The ABCs of Autism Acceptance by Maxfield Sparrow, and saw that it was “only” 152 pages, I thought, “this won’t take long to read, so sure, I’d love to!”   I was wrong. This is the largest 152-page book I’ve ever read. In fact, I wrote more notes for this book than I did for a 500-plus page book I reviewed in 2015.   The book’s title is straight-forward: Maxfield uses the Roman alphabet as a way to educate the reader about autism acceptance from an autistic person’s point of view, while interlacing…

Silhouetted young child in a blue playground tunnel.

Disability

Autism Is Not a Shell Surrounding a “Normal” Child

January 12, 2017April 10, 2022 by Maxfield Sparrow

Autism is so much a part of who your child is that many of us Autistic adults who are able to communicate, and who choose to talk about being Autistic, will tell you that it hurts us to hear or read phrases like “fight autism,” because it feels like people want to fight us.

Disability

Electroconvulsive Therapy and Autism: Caution Advised

October 31, 2016January 31, 2022 by Shannon Des Roches Rosa

Shannon Des Roches Rosa Photo © Skyseeker, on Flickr. Creative Commons license. [image: lightning striking a cityscape, at night.] Spectrum News recently published How ‘Shock Therapy’ is Saving Some Children with Autism. The article was also published in The Atlantic. Like many of you, my initial reaction was “WTF.” Which, to be fair, was in part primed by the the misinformation spread by existing autism and electroconvulsive therapy (ECT) proponents. But I am always worried about articles about “treatments” for autistic people who self-injure, because of the focus on treatments rather than sourcing out causes. So here’s what I think you should know about reading articles like this, and about ECT and autism in general. Spectrum is dedicated to covering developing autism science, and articles of interest to the autism science and research communities. Ideally, those readers already understand that there is very little research into autism and ECT, that…

Black-and-white illustration of a Borg drone, by Sonny Hallet

acceptance

Autism and Normalisation

October 27, 2016October 11, 2022 by Fergus Murray

Full normalisation of autism would require a substantially broader concept of ‘normality.’ It would mean acceptance of autistic people who are non-speaking, an understanding of meltdowns, and general awareness of the dangers of sensory overload.

Black-and-white photo of two people embracing, one with their head on the other's shoulder.

Accommodations

Understanding Autism, Aggression, and Self-Injury: Medical Approaches and Best Support Practices

August 17, 2016November 24, 2024 by Clarissa Kripke, MD, FAAFP

Sometimes people try to get your attention by doing things that can appear to be aggressive, but they’re really saying, “I have a problem, and I need help.”