Tag: understanding

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Disability

Helping Autistic Children Understand Death and Dying

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Maxfield Sparrow unstrangemind.com Photo © Benedic Belen | Flickr/Creative Commons [Image: Black-and-white photo of an Asian woman comforting a small crying child who is wearing a tiara, and has their hands over their face.] The Thinking Person’s Guide to Autism asked Autistic adults to fill out a survey about death and dying to create a resource for people who need to explain death to Autistic children. The response was tremendous—in less than a week the survey had 50 responses, mostly from Autistic adults. What follows is a summary and analysis of the responses. We hope it is useful to you, your child, your family, your clients, and your students. Please note that some of the responses discuss difficult material, including suicide, and suicidal ideation/threats. Bullet Point Summary Autistic adults were surveyed about death and dying. Most learned about death through observation of people, animals, and plants. Learning about death was…

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Disability

Why Everyone Should Read The ABCs of Autism Acceptance

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Patricia George www.persnicketypatricia.ca The ABCs of Autism Acceptance [image: Book cover, with white text reading “The ABCs of Autism Acceptance” on a background of multicolored representations of letters of the Roman alphabet, above black text on a white background, reading, “by Sparrow Rose Jones.”] I’ve been an avid reader my whole life, so when I was asked to review The ABCs of Autism Acceptance by Maxfield Sparrow, and saw that it was “only” 152 pages, I thought, “this won’t take long to read, so sure, I’d love to!” 

I was wrong. This is the largest 152-page book I’ve ever read. In fact, I wrote more notes for this book than I did for a 500-plus page book I reviewed in 2015.

 The book’s title is straight-forward: Maxfield uses the Roman alphabet as a way to educate the reader about autism acceptance from an autistic person’s point of view, while interlacing…

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Disability

Electroconvulsive Therapy and Autism: Caution Advised

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Shannon Des Roches Rosa  Photo © Skyseeker, on Flickr. Creative Commons license. [image: lightning striking a cityscape, at night.] Spectrum News recently published How ‘Shock Therapy’ is Saving Some Children with Autism. The article was also published in The Atlantic. Like many of you, my initial reaction was “WTF.” Which, to be fair, was in part primed by the the misinformation spread by existing autism and electroconvulsive therapy (ECT) proponents. But I am always worried about articles about “treatments” for autistic people who self-injure, because of the focus on treatments rather than sourcing out causes. So here’s what I think you should know about reading articles like this, and about ECT and autism in general. Spectrum is dedicated to covering developing autism science, and articles of interest to the autism science and research communities. Ideally, those readers already understand that there is very little research into autism and ECT, that…

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Disability

Five Ways to A Brighter Future for Autistic People

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TPGA is observing Autism Acceptance Month by featuring accounts from autistic people about the differences accommodations (or lack thereof) make in their lives. Today, British autistic filmmaker and author Carly Jones outlines her “Top five understandings previous Autistic generations did not have, that the next Autistic generation must have as standard.” Carly Jones www.facebook.com/olley.edwards Carly and her family [image: A laughing white woman with long dark hair, lying on a striped blanket with her three children.]  1) See autism as a real disability Disability is not a dirty word, though it feels that way to some — we are all too often encouraged to see disability as “less than” “inferior,” or “disadvantaged.” I see disability as someone having a different experience of the world than is “typical.” Although Theory of Mind (lack of pre-installed knowledge that other people’s thoughts, wants, and agendas may differ from one’s own) is noted as…

Disability

Disability: Considering Insider vs. Outsider Perspectives

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Amanda Forest Vivian adeepercountry.blogspot.com This post was originally included in our 2011 Dialogues series. But we think it deserves separate attention, and are republishing it with the author’s permission.  —- This is just a theory, so be gentle. But I think a lot of problems between non-disabled people and disabled people might have to do with the fact that for most born-disabled people, their disability is ego-syntonic (integrated with their self-image). One! Ego-dystonic is an psych term for an aspect of a person that doesn’t fit their self-image. For example, if someone lost their legs in an accident, they would probably wake up the next day and see a body that didn’t seem to them like their real body. On the other hand, if someone is born without legs their disability is usually ego-syntonic, so they feel as attached to their body as anyone else.  They don’t feel the same…

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Disability

Busting Anti-Vaccine Myths While Supporting Autistic People

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I was given the opportunity to head a “Let’s Talk About Autism” discussion for the excellent organization Voices for Vaccines, in order to help vaccine advocates understand how anti-vaccine information can be hurtful to the autistic community, and with the hope that better understanding about autism as part of pro-vaccine messaging will help spread acceptance of autistic people like my son Leo. If you missed the discussion, which was followed by a Q&A, one option is to listen to the Voices for Vaccines “Let’s Talk About Autism” recording. Or you could read the below version of the talk I gave, though the live version include some improvisation.  I’ve been writing about autism at www.Squidalicious.com since 2003, when my son Leo was first diagnosed as autistic. I’m also a founding editor at Thinking Person’s Guide to Autism, where we have a very active Facebook community, and a BlogHer contributing editor for…

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Disability

Best Autism Conference Ever: The UK National Autistic Society’s Professional Conference 2014

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Shannon Des Roches Rosa www.squidalicious.com I had no idea autism acceptance and understanding in the UK were so much more culturally ingrained than in the US. Granted, there is still much work to do, and government cutbacks in housing for people with disabilities continue, etc. But the disconnect was shocking. And, I was told, much of it had to do with the National Health Service covering autistic people’s needs as a matter of course. Families don’t need to worry about paying for autism services; they need to worry about getting their kids and family members and selves appropriate services. As a result, according an American parent friend who lives in Yorkshire, there is much less of the catastrophizing of autism than we see in the States. I witnessed these attitudes and approaches during the National Autistic Society‘s (NAS) Professional Conference 2014 in Harrogate. I saw an effective national autism organization…