On Autism and Wandering: We Need Data

Though wandering or “elopement” is not a safety concern exclusive to the autism community, it is a hot topic due to the Centers for Disease Control and Prevention (CDC) proposal to make wandering a medical diagnostic code. While those behind the proposal argue that codifying and diagnosing wandering will lead to increased data and a better understanding of prevalence, critics worry that a medical diagnosis for wandering could lead to involuntary restraint and abuse of vulnerable autistics. At the Thinking Person’s Guide to Autism, part of our mission is to support good science, and that starts with good data. With this in mind, we interviewed two advocates of the Interactive Autism Network (IAN)’s survey on wandering and elopement (escaping) among individuals with autism spectrum disorders (ASD): Lori, whose son Connor has autism and for whom wandering is a serious safety issue; and Dr. Paul Law, Director of the Interactive Autism…