img_3981-7041486

Takeaways From The 10th Annual UCSF Developmental Disabilities Conference

Shannon Des Roches Rosa www.thinkingautismguide.com www.squidalicious.com I had the good fortune to speak at at well as attend last week’s UCSF Developmental Disabilities Conference, thanks to the networking wizardry of TPGA contributor Laura Shumaker. It was an experience for which I am profoundly grateful — it exemplified The Thinking Person’s Guide to Autism’s mission of bringing together parents, professionals, and adults with autism so we can learn from each other, so our community can become stronger and more effective. Though the conference covered more than autism, I am going to focus on a few autism-related takeaways. iPads and Autism Danielle Samson, MA CCC-SLP and Shannon Des Roches Rosa, MA My talk with crackerjack SLP Danielle Samson opened the conference. Danielle covered autism, iPads, and AAC devices from the professional’s perspective, followed by my perspectives as an autism parent, community member, and former educational software producer. It was on most points…

Emergency Evacuation Should Be Part of the IEP

Charles P. Fox specialedlaw.blogs.com Note from the editors for readers from outside of the United States: In the US, educational rights for students with disabilities are covered by the federal Individuals with Disabilities Education Act (IDEA). IDEA requires that each student covered under IDEA must have an Individual Educational Plan (IEP). Another piece of legislation, the Americans with Disabilities Act (ADA) also has educational implications. The particular section that refers to education is Section 504; accommodations and modifications for students with disabilities covered under ADA is commonly referred to as “a 504 plan”. Further comments from the editors: This post had been planned for some time. As we were preparing this post for publication, Japan experienced a 8.8+ earthquake. In addition to the earthquake destruction, many areas of Japan’s coast were hit with tsunamis, with further destruction and loss of life. At this time (03/11/11, 12:02 am, Pacific Standard Time)…

mitochondria-4924715

Mitochondrial Disease and Autism: Linked?

Emily Willingham daisymayfattypants.blogspot.com biologyfiles.fieldofscience.com Image by Countincr, from Wikimedia Commons Hannah Poling’s family entered the national spotlight when they revealed that Hannah’s autism-like symptoms may have been linked to a reaction to several childhood vaccines at once in combination with her mitochondrial dysfunction. Her case was not the first revelation of a possible mitochondrial disorder (MD)-autism spectrum disorder (ASD) link, but because of her ultimately successful vaccine injury suit, she became the avatar of the vaccines-cause-harm movement — which almost eclipsed the real scientific and therapeutic feature of her case: the mitochondria. About Those Mitochondria First, a little bit about mitochondria. A review paper, published in Molecular Psychiatry and open access, gives a fine and detailed overview, so my summary here is brief. The mitochondria do the heavy lifting for the cell’s energy needs. They take the chemical remains of what we eat and transfer that energy into molecules that…

Parenthood: Telling Your Child about Asperger’s

How do you tell your child he has autism? Or, how do you tell your child he has autism when perhaps you are just hearing the information for the first time too? We asked some questions on our TPGA online community page and got some great answers. We also asked whether our community would be watching NBC’s, Parenthood last week when the topic was a featured story. A young boy, Max (Max Burkholder) discovers he has Asperger’s when he hears his father Adam (Peter Krause) yelling at his Uncle Crosby. Adam shouts “Get it through your thick skull, your nephew has Asperger’s!” Looking down from the stairs, Max says, “I have Asperger’s? What is…Asperger’s?” Stunned, the adults were speechless. In the storyline, the parents, Adam and Kristina (Monica Potter) have apparently known for a while that their son has Asperger’s but decided he was too young to be told about…

The 26th Annual International Technology & Persons with Disabilities Conference

Sandy Plotin Managing Director Center on Disabilities California State University, Northridge The 26th Annual International Technology and Persons with Disabilities Conference (www.csunconference.org) will be held March 14-19, 2011 at the Manchester Grand Hyatt Hotel in San Diego. TPGA editor Shannon spoke with Sandy last week about who the conference is for, who will be speaking, and why anyone who can go, should. Can you summarize the goals of the conference for us? Our conference is in its 26th year, and is dedicated to promoting all the things that people with disabilities can do, all the technologies that are out there. The most important feature we like to get across about our conference is the networking aspect — people find out just as much information from talking to other people in the sessions or walking in the hallways as they do from the speakers. This is the place where, if you…

Dear Parents of the Blue Bombers

Judy McCrary Koeppen www.septar.org www.sagetherapy.com www.sagetherapy.blogspot.com Dear Parents of the Blue Bombers, Last week my husband attended the team parent meeting. He was confronted in front of the group by a couple of parents about our son. My husband was not at the game he was asked about. I was there and was organizing the team snack when my son evidently hit or pushed a child on the other team after being taunted. I was never aware nor told that this had occurred. Our message to him was, and continues to be, that this type of behavior is never acceptable. At the beginning of the season I told the coach (as I do every coach, camp counselor etc.) that our son has learning and attention deficits and sometimes has difficulty controlling his emotions when in competitive situations. I asked the coach to let us know if he needed assistance, had…