Illustration showing a bright white moon through bare white winter trees. A person wearing a yellow hoodie with the hood up is sitting on a bed, crying.

Autism

Grieving While Autistic

September 1, 2021May 27, 2022 by Jess Hudgins

I could only feel was what was missing. I couldn’t hear his voice. I couldn’t smell him near me. There were no more cuddles and no more hugs. That the sensory input of love and family that I had known every day since I born was no longer in my life.

Newborn baby on its belly, seen from above, lying on a fuzzy mat on an even bigger fuzzy bear cushion.

Autism

Parents: Let’s Talk About Grief and Disability

February 14, 2018September 11, 2024 by Spectrum Disordered

During my 15 of autism activism, I’ve seen tremendous positive change in what people—including parents—believe about autism, but this “grief” crap JUST WON’T DIE.

Graphic with the title "Karla's Emotion Picture (FYI)" Vertical rectangle divided into five horizontal bars. To the left is an upward facing arrow labeled, "intensity" The bottom bar is white and labeled "Unaware". Text to its right reads, "When I was younger I was 100% unaware of any sort of emotion in me and would be shocked when I was in a meltdown all of a sudden. It still happens sometimes today though I try to actively practice awareness of my physical and emotional selves in order to survive." The next bar up is green and labeled "Happy or Sad". Text to its right reads, "Everything is just fine. I am a mostly happy being and sometimes sad. Neither of these emotions are bad to my current awareness nor cause me distress that I know of". Between the green bar and the next bar up is a dotted line labeled "Emotional Regulation Line" Next bar up is yellow and labeled "Some Fear/Anger". Text to its right reads, "I will feel 'off' here but most of the time I cannot articulate what that means and often cannot tie it to any one thing". Next bar up is red and labeled "Bigger Fear/Anger". Text to its right reads, "Here I know FOR SURE that if I do not take corrective action that I will have a Meltdown. Again I sometimes am not sure why this is happening. Mostly I just need to be left alone here." The top bar is black and labeled "Meltdown". Text to its right reads, "A meltdown to me is an intense mixture of fear and anger and other emotions that confuse me. Sometimes I laugh due to the confusion when nothing about it is 'funny'."

Autism

Autistic Grief Is Not Like Neurotypical Grief

August 1, 2012September 6, 2022 by Karla Fisher

There really are no good articles on how to help an autistic person process grief. It is with this hole in mind that I create this article.