Reflections on Mature Autism

Rory Patton springingtiger.wordpress.com I love it when someone asks me to write a guest piece about my experience of autism because it compels me to think about it in a way I don’t in my blog. On this occasion the invitation has been more or less coincidental with a recent blackout and even more recent meltdown. I don’t pretend to be an expert on autism; sometimes I am not certain I am even an expert on me! There has been some debate over whether Asperger’s Syndrome should disappear as a discrete diagnostic category and instead be subsumed into the more general description of Autism Spectrum Disorder. I personally prefer the label Asperger’s — much more socially acceptable than “Autism” — but recent events have reminded me of just how firmly we are part of the Autism Spectrum. I am very much inclined to believe that the key difference between Asperger’s…

Identifying and Avoiding Autism Cults

Shannon Des Roches Rosa www.squidalicious.com www.canisitwithyou.org www.blogher.com/blog/shannon-des-roches-rosa A child’s autism diagnosis can mess with parents’ heads. Media portrayals of children with autism and their adult spectrum-mates dwell almost exclusively on negatives and challenges, so when a parent is told that their child is autistic, they are usually incredibly upset. It doesn’t help when doctors lack the bedside manner to soften the emotional impact of their diagnoses, or have no information about contemporary autism therapies and resources. When that happens, parents are both freaked out and flapping in the wind. Their child’s doctor was supposed to give them answers and guidance, but instead upended their lives, then shoved them out the door. No one can explain why they have a child with autism, and they know nothing about autism. They are emotionally reeling, angry with the medical establishment, and hungry for any information that will help their child. Most parents start…