Paula Durbin-Westby is an Autistic advocate and an autism parent. She and her son recently appeared in the PBS P.O.V. documentary Neurotypical, a film meant to challenge public perceptions of Autistic people as well as allow Autistics to represent themselves. Paula’s portrayal in the final version of the film, however, was not at all what she was expecting. We talked with her about the distress of being publicly misrepresented as an Autistic, as well as her recommendations for filmmakers and other media types hoping to accurately portray Autistic experiences. What was your goal in agreeing to be interviewed for Neurotypical? My point was to counter pernicious media assertions that Autistics (and other people with neurobiological disabilities) are incapable of parenting and relationships. Unfortunately, I think the film’s portrayal of me has actually reinforced some of those assertions. I don’t have any problem with being shown as disabled, or as Autistic.…
Tag: Paula Durbin-Westby
This April will once again be Autism Acceptance Month on Thinking Person’s Guide to Autism, in the spirit of Paula Durbin-Westby’s Autism Acceptance Day and Month initiative at autismacceptanceday.blogspot.com, and ASAN’s Autism Acceptance Month project. We want to help make April matter, in terms of helping spread the word and further acceptance and understanding of autistic experiences, happiness, and rights — and we’d like you to participate if you’re willing and available. Here’s what to do: Please send us a post or captioned picture that represents the message or story you’d like thousands of people to see and/or hear for Autism Acceptance Month. It doesn’t have to be an original submission (we understand that everybody wants something from our community members during April), but you do need to own the copyright. Submissions can be emailed to thinkingautism at gmail dot com. That’s it. We’ll publish a new essay, story, or…
Today, December 14, 2012, I got a text about four minutes before I walked into my son’s school to play the piano for a winter program. The text said that 18 (then up to 20) children had been killed at an elementary school, not unlike my son’s. Children the age of the children I would be making music with in a few minutes. I was in shock. The texts I was receiving came from my dear brother, who has small children of his own. Since I was not online or near any media sources, he wrote to me what I was seeing on breaking news, and we texted together, as parents, about how horrible, how unthinkable, this heinous act was. His children were with him; mine was in school, and I had to resist an overwhelming impulse to sign him out and leave. Then I had to go into the…
Paula C Durbin-Westby paulacdurbinwestbyautisticblog.blogspot.com I am not a completely nonspeaking Autistic, of course. Many people have seen me speak and some do not even know that I lose speech at times. My loss of speech is temporary, and can last a few seconds to a few hours or the good part of a day. Sometimes it really is the good part of the day, as I often find talking to be exhausting and it’s nice to not have to do it, even if it is because I temporarily can’t do it. The following short video clip is part of what is going to be a longer video. I have about 5 or 6 of the segments made, but need to get to a much faster Internet connection to upload them, and need some more time to edit it all into one video. Here’s for starters. This one was made recently,…
You are not alone. Many teens who receive an autism diagnosis feel broken, and suffer from pain of acceptance — even to the point of suicidal thoughts. And the resources you need are not easy to find. So we asked several adult autistics who were once autistic teens themselves: If you were in this headspace, how would you feel, what would you want people to say to you, what could possibly help? These are their replies. Karla Fisher I was angry the day I received my diagnosis. At first it just made me feel “broken.” People tried to tell me that I was the same person I was before. But those words did not make me feel better. Reaching “acceptance” of my label took me around eighteen months. There is very little written about this process that pertains to autistic people as our emotions do not neatly lineup in the…
We’re featuring “Slice of Life” conversations with Autistics of all ages — kids through adults — throughout April’s Autism Acceptance Month. Our goal is to help TPGA readers understand that autistic people are people who have interesting, complicated lives and who are as diverse and varied as any other population united by a label. We are the people in each other’s neighborhoods, and the more we know about each other — the more visible autistic people and children are — the more common autism acceptance will be. That is our hope. Today we’re talking with Paula C. Durbin-Westby who has been running an Autism Awareness Day and Month campaign all month in the name of “ACCEPTANCE, not tolerance, not ‘yes, but…,’ just acceptance. Pro-neurodiversity, pro-supports and services, against ‘cures.’” Paula also recorded a video version of her answers to our questionnaire, for greater accessibility. What is your name? Paula C.…
Paula C. Durbin-Westby paulacdurbinwestbyautisticblog.blogspot.com I am writing here about one aspect of this horrible killing of a six-month-old baby, that of the mother’s fears about the costs of having an Autistic child: http://www.huffingtonpost.com/2011/12/06/stephanie-rochester-trial_n_1131305.html Whether or not the parent was not legally sane at the time of the killing is not what interests me. She was coherent enough at one point to express her fear that the child would cost her too much, both emotionally and financially. “Rochester told detectives that she thought having an autistic child would emotionally and financially “ruin” her life.” Let’s take a look at some of the things she might have read before she made a decision to kill a six month old baby. While there may have been other reasons for the infanticide, including her state of mental health, the following examples could greatly add to her worries. First, let’s look at common “information” about…
We held a dialogue series last week between self-advocates Zoe, blogger at Illusion of Competence, and Ari Ne’eman, President and co-founder of The Autistic Self-Advocacy Network; and parent Robert Rummel-Hudson, author of Schuyler’s Monster and blogger at Fighting Monsters With Rubber Swords. The series continued this week with Melody Latimer, director of The Autistic Self-Advocacy Network’s Dallas-Ft. Worth chapter and blogger at ASParenting, Kassiane of Radical Neurodivergence Speaking, who prefers the term “advocate,” self-advocate Amanda Forest Vivian, blogger at I’m Somewhere Else, and autism parent Kristina Chew, who blogs at We Go With Him and Care2.com. You can read the entire series at thinkingautismguide.blogspot.com/search/label/dialogue Our thanks, once more, to everyone who had participated in the Dialogues. We’ll wrap up with a reminder of why we hosted this series in the first place: Because it needs to happen. Because being a parent of a disabled child is not the same experience…