Why parents of autistic kids need to be cautious and thoughtful about the therapies they consider for their children.
Tag: Pseudoscience
Food is an important part of life. Instead of using food as a “positive reinforcer,” or diets as part of a cure attempt, parents can use food and conversations about food to connect with their autistic children.
I am all about helping parents learn from my mistakes, so they don’t repeat my mistakes. Here are five bonks I made during the early years of parenting my autistic son, and how you can avoid repeating my fails.
As an autistic, the impression I was left with after reading Steve Silberman’s book NeuroTribes was one of enormous relief. The book not only avoids the usual pitfalls of fear-mongering and stigmatizing language that surround the topic of autism, but actually explains the origins of those pitfalls
Emma Dalmayne autisticatedalmayne.com When I was diagnosed with Asperger’s syndrome two years ago I felt relieved, jubilant, and sad all at the same time. Relieved, because I now knew myself, I could understand so much more about myself. There were a lot of ‘ahh!’ moments to look back on! Jubilant, because I know knew I wasn’t unreasonable or a complete misfit; I was part of a neurodiverse community that helped me be proud of my autistic identity. Sad, for all the missed opportunities I had had, all the misunderstandings and meltdowns that are — in short — terrifying when you do not understand why you are going through them. Most of all I wanted to help other parents, as I am a mother to neurodiverse children, including two with complex needs, and felt I could offer help to others. I started a Facebook group with a large volume of autistics…
Susan Walton This week in a local parent forum, a member spoke up about MMS, a “treatment” that TPGA has examined (with horror) in the past. (See TPGA science editor Emily Willingham’s Dangerous Interventions: MMS and Autism.) A TPGA Editor was present during the MMS forum discussion and suggested we are reprint the conversation, with permission from that forum’s Moderator. Maybe there should be a 12 step program for autism parents who have fallen for misguided and misdirected “hope.” —- I am the father of a 5.5 year old ASD kid. He was diagnosed with autism three years ago. For the last three years, we tried many “treatments” including Andy Cutler protocol [chelation], multi-vitamins, Methyl-B12 shots, GFCFSF diets and various therapies. At one point in time, we were giving around 35 supplements and medicines per day. We saw some improvements for each of the above therapies. But they were MINOR.…
Shannon Des Roches Rosa www.squidalicious.com My son has had a challenging few months. We have been scrambling, hard, to figure out the best ways to support him, help him feel comfortable and settled. Medical treatments have helped, as has a forensic approach to figuring out stressors in his environment, as has looking back through his daily record for patterns in sleep, illness, exercise, and routine. But when he’s still unhappy or dysregulated despite all our best efforts plus the efforts of his extended team of doctors, educators, and therapists, I feel like I’d do anything to help him. An autism parent at such a loss is in a potentially dangerous spot. Their autistic child more so. Because if mainstream medicine and legitimate therapies and approaches can’t provide answers, that’s when parents tend to look elsewhere. That’s when they risk exposing their child to therapies that can cause physical harm (e.g.,…
Emily Willingham www.emilywillinghamphd.com www.forbes.com/sites/emilywillingham It’s happened again at Fox News. After taking down a story last year that was packed with misinformation about genetically modified foods — headlined “What you need to know“ — Fox has now offered up another similarly underevidenced article, this time headlined “Can autism be prevented?” Short answer: No, not usually. In spite of that, the article goes longer and turns to one ‘Rober’ (sic) Melillo, who practices something called “chiropractic neurology.” The unbylined article says about autism: “The statistic rates used to be one in 150 — so how did we get these new numbers? Dr. Rober Melillo, co-founder of the Brain Balance Achievement Centers, spoke with Dr. Manny Alvarez, senior managing health editor for FoxNews.com, about the science behind autism, as well the facts and myths surrounding the condition.” Melillo, in fact, does neither. Instead, he exhibits a rather basic grasp of genetics, blames…
Emily Willingham www.emilywillinghamphd.com www.forbes.com/sites/emilywillingham When we wrote previously about the use of MMS, a bleach compound, administered orally or as enemas on the promise that it would “cure” autistic people, we received many, many comments in support (or defense) of using MMS. Many people exhorted us to ‘do our research,’ to not ‘jump to conclusions.’ One of the most recent comments went as follows: “Your ‘argument’ falls down immediately. It is not bleach — the chemical structure is completely different. This is where unbiased researchers like me stop reading — you can’t even get the chemistry part correct so why bother. If you can’t be bothered to research your subject then please don’t write about it, it really is that simple.” Weary of this kind of assertion and the ad hominems that always seem to accompany the defensiveness, I offered to this particular commenter the following suggestion: “Why don’t you…
Emily Willingham www.emilywillinghamphd.com www.forbes.com/sites/emilywillingham Image source: pixabay.com Chelation is a “treatment” for autism promoted by the likes of Jenny McCarthy’s Generation Rescue group and others in which a chemical that binds metals is (usually) injected or infused into an autistic child with the intent of removing said metals from the blood. Now a review of the scientific studies on chelation and autism has concluded that not only is chelation ineffective, it can be dangerous. Indeed, chelation appears to be a case study of the dangers in using children as guinea pigs for random autism-causation hypotheses with no basis. According to Tonya Davis, Ph.D., lead author of the paper, quoted in a news story about the publication: “Chelation therapy represents the ‘cart before the horse’ scenario where the hypothesis supporting the use of chelation was not validated prior to using it as a form of treatment. Evidence does not support the hypothesis…