Why Closed Captioning Isn’t Just For Deaf People

Aspie Teacher www.aspieteacher.com Thanks to the excellent advice of a friend, closed captioning is one of the most helpful discoveries I’ve made. I didn’t even know until recently that you could get closed captioning on any TV show just by turning it on in your cable settings! For a long time, my husband and I have been really frustrated by the ratio of how much we paid for cable to how little TV we watched. And then, oh my god, I discovered closed captioning. I could finally read TV instead of just watching or listening to it — what a revelation! See, following a conversation is pretty complicated: You have to be able to hear what’s going on. There’s also the assumption that the language being spoken is one you understand. There’s the question of whether you can parse the words correctly, or tell where they begin and end. And…

Arbitrary Normality

Dr. Rob Lamberts distractible.org I’ve been practicing for sixteen years now, doing both internal medicine and pediatrics. One of the joys of that is watching kids under my care grow up and not having to give up their care just because they get older. The spectrum is wide, with some kids growing up in “normal” families with “normal lives,” others in “abnormal” families, and yet others with inherently “abnormal” lives due to illness or disability. But the kids aren’t the only thing that has changed over the past sixteen years, their doctor has changed as well. My comfort zones have widened, not getting rattled by “abnormal” as I once did. I used to feel uncomfortable with the mentally and emotionally disabled, now I am not. I used to feel sorry for parents with “abnormal” children. I used to feel bad for kids who were “abnormal;” I still do now, but…

Preventing Meltdowns: Outsmarting the Explosive Behavior of Individuals with Autism Spectrum Disorders

Judy Endow, MSW www.asperger.net www.makinglemonadestore.com Meltdown behavior is quite common for those with Autism Spectrum Disorders. And, indeed, the most frequently asked question by parents and educators is: “What do I do when my child has meltdowns?”  When the meltdown is occurring, the best reaction is to ensure the safety of all concerned. Know that explosive behavior is not planned but instead is most often caused by subtle and perplexing triggers. When the behavior happens, everyone in its path feels pain, especially the child. Stages of Explosive Behavior So, what exactly is explosive behavior? In my book Outsmarting Explosive Behavior: A Visual System of Support and Intervention for Individuals with Autism Spectrum Disorders (Endow, 2009), explosive behavior is defined as having four distinct stages, followed by a clearly defined recovery period. In addition, the physiological fight/flight mechanism is triggered immediately prior to the explosion. In this model, the four stages…

On Autism and Self-Compassion

Kristin Neff  Ph. D. www.self-compassion.org www.horseboymovie.com My field of study is self-compassion, it’s what I do all my research on, and I’m writing a book. One of the things that this practice has given me is that I’m really okay with being my honest, authentic self. It’s not that I like people judging me. It was kind of hurtful, some people really went after us because of the [Horse Boy] movie, they said that we made it all up, that we’re in it for the money, and people who didn’t know me were making all these assumptions about my character. It was really strange; I never thought I’d be in that position. But in terms of the stuff that is true about me, I’m really okay with it. I’m also okay with admitting my flaws and my shortcomings, and that it’s okay to be imperfect. In my book [on self-compassion],…

What to Ask of an Occupational Therapist

Barbara H. Boucher, OT, PhD, PT www.therextras.com My identity as an OT runs as deep as my sense of being an adult. I begin on a personal note because if you have trouble discerning a person’s face or need concrete affirmation of my being you might imagine me to have three heads: As a naive undergraduate I learned at the feet of Jean Ayers’ generation of occupational therapists. For reasons that are most easily characterized as my professional “developmental” trajectory, I became a physical therapist, also. A complete psychological profile of me might read that I received a great deal of reinforcement in an academic setting. From my Doctor of Philosophy (PhD) in Human Development and Family Sciences I claim the title of Child Development Specialist. If the words “occupational therapy” (OT) are new to you and accompanied your child’s diagnosis, you are not alone in struggling to understand what…

Autism: Feeding Issues and Picky Eaters

Judy McCrary Koeppen www.septar.org www.sagetherapy.com www.sagetherapy.blogspot.com Autistic children are often very picky eaters, or have eating issues. Having your child refuse to eat any foods that are not white and soft in consistency can be maddening, but as a speech therapist and parent I’ve found it most helpful to have a clear understanding of why a child self-limits their diet. Eating is a multi-sensory experience. Each mouthful brings the possibility of a variety of flavors, textures and temperatures. A feeding specialist would break this down further, identifying “Flavors” including sweet, sour, salty, spicy, bitter and neutral; “Textures” including crunchy, chewy, soft, mixed, puree, thick liquids, and thin liquids; and “Temperatures” including cold, room temperature, warm, and hot. In addition, we experience food odors, and often the way they feel in our hands. Many children who are picky or problem eaters may have Sensory Processing Disorder (SPD). In her book The…

Supporting and Promoting The Thinking Person’s Guide to Autism

Some of you have asked how you can help us promote The Thinking Person’s Guide to Autism. Here are three simple actions: Follow our Twitter stream at @thinkingautism and retweet our posts. We publish a new essay every weekday, between midnight and 3 AM PST. Join the conversation: comment on our posts! We’ve had some great discussions, and look forward to more. Visit our Facebook page. You can also install “like” code for our Facebook page on your blog, as we have in this blog’s right-hand sidebar.  Email us and we’ll send you the code. Thanks so much, Shannon, Liz, Jen, & Emily Editors, The Thinking Person’s Guide to Autism

Choosing a School for Children on the Autism Spectrum

Kristina Chew autism.typepad.com My son Charlie has been in both public and private placements. He is 13 years old now; he started attending school — a special education preschool classroom in the St. Paul Public School District — when he was just around 2 years old. Looking back, he’s been through most every kind of placement, from special education classrooms located in a public elementary or middle school, to a small private school only for autistic children, to a large public center for some 200 children with autism and other disabilities. Again and again, we have found ourselves looking for a school for Charlie. Too often, we have thought we have found “it” — a school, a school district where the right program and supports and staff seem to be in place, and then things started to seem not so good, and then to fall apart. At no point have…

The One-Two Punch of Autism: The Case for Insuring Our Kids’ Future

Liane Kupferberg Carter http://www.huffingtonpost.com/liane-kupferberg-carter Though this essay references legislation and congressional matters specific to New York State, the entire autism community could benefit from improved insurance coverage. -Eds “Your child has autism.” It’s a devastating diagnosis for a parent to hear. But it’s a one-two punch when your insurance company then refuses to cover the critical, medically necessary therapies your child desperately needs. When our then-2-year-old son was diagnosed with a developmental disability 16 years ago, a team of medical experts prescribed a rigorous program of therapies. However, state-funded early intervention services were only able to offer us an hour and a half a week of speech therapy — for a child who wasn’t talking. We found private therapists to work with our child. But when we tried to file an insurance claim, the insurance company turned us down flat. “We don’t cover educational treatment,” they told us. We appealed.…

Autism and Biomed Protocols: A Primer on Pseudoscience

Emily Willingham and Kim Wombles Emily’s family has kept their biomed treatment — or any treatment excepting occupational and behavioral therapies — to a minimum, primarily because of some inherent skepticism. Their current biomedical interventions are limited to fish oil, probiotics, and some vitamins.  The Wombles brood has generally taken a similar approach, although they spent four years gluten and dairy free (with Kim worried she was getting ALS every time she ate her own GFCF baking! Cough cough — dry stuff) before admitting that it made no difference for them whatsoever, except that there were five much happier people once they went off the diet. Many autism parents investigate biomedical or “biomed” approaches as a way to ameliorate negative manifestations of their child’s autism. These parents can also find themselves overwhelmed by biomedical protocol possibilities. Sorting through these protocols can be a daunting task, which is, of course, one…