The world made me feel like an autistic failure for so long, but all it took was some kindness and understanding for me to realize that I am quite extraordinary.
Tag: Disability
HEARD is a Black-led and disabled-led, cross-disability abolitionist organization. With practically no funding, HEARD has been doing vital work that no one else does.
The term “profound autism” is not very useful to parents like me, or autistic people like my son. Instead, parents need connection with the communities who understand our kids’ high-support traits, like the disability and non-speaking communities—in addition to the wider autistic community.
We need to highlight the plight of autistic people in Kenya, especially in rural areas where many autistic people are kept hidden and abused. It helps for information about autism in Kenya to appear in blogs and videos.
Cover of the book We Move Together [image: Book cover with an orange background. An illustration of the lower halves of five folks is at the top: A yellow guide dog, a person with brown skin using a cane, a person with brown skin standing with their hand on their hip, a person with white skin and crossed ankles standing with their hand on their hip, and a person with brown skin using a wheelchair.] Review by Kate Ryan We Move Together is a new picture book by a diverse team of authors (Kelly Fritsch, Anne McGuire, and Eduardo Trejos) who have come together to write a love letter to the disability community. It is, in a word, fantastic. It is empowering, it is interesting, it is understandable, it is relevant—I could go on all day about how much I love this book. Unfortunately, as I discovered to my dismay, it…
Photo © Shannon Des Roches Rosa [image: Orange and purple flowers among green leaves.] Cal Montgomery montgomerycal.wordpress.com twitter.com/Cal__Montgomery For Mel Baggs and Phil Smith, who knew, and know, communion with the wild places better than I can imagine. Do you remember how you learned to communicate? If you communicate pretty typically, odds are it wasn’t perfect, but it included something like: you reached out socially, and people reached back. You looked at them; they gazed adoringly back at you. You smiled; they smiled back and waved. “Hi, Baby! Hi! Oh, what a beautiful face!” You laughed; they reveled in your chortles and giggles and were silly in the hope that you would laugh again. You cried; they held you and comforted you and tried to figure out what was making you miserable. You called out at night; they pulled themselves out of exhausted slumber, scooped you up, and blearily cuddled…
For people in under-represented communities—autistic people included—there is nothing quite like seeing “someone who moves like you” in mainstream storytelling. We talked with Pixar’s Erica Milsom, who wrote and directed the lyrical SparkShorts film Loop, about the importance of listening to people who actually inhabit the worlds creators want to bring to the screen, the power of storytelling and representation, why it matters that Loop’s autistic character Renee is both a girl and a person of color, and the importance of connection on a purely human level—especially between people who communicate or act differently from each other. Loop writer and director Erica Milsom. Photo courtesy Pixar. [image: A white woman with a silvery-gray bob and clear-framed glasses.] Content note: mention of children of color killed by police Thinking Person’s Guide to Autism: Erica, I just want to thank you so much for agreeing to this interview, and for the work…
Shannon Des Roches Rosa twitter.com/shannonrosa I want to make this as friendly as possible, so I think it’s important to start by clarifying terms: Inclusion, my lovelies, is a real and basic human right, and it simply means autistic and other disabled people have the right to be out and about in the world, and not segregated or hidden away as used to be the default for their community members. Inclusion does not mean forcing people like my high-support autistic son to be in places they don’t want to be, that aren’t set up for them, or in which they aren’t welcome. But even when we embrace inclusion as a disability rights baseline, my son still doesn’t get to do all the things—but that’s because of accessibility barriers, not because inclusion itself is a flawed concept. Even though The Americans with Disabilities Act (ADA) installed accessibility as the law of our…
“I like to remind people that health departments and institutions are not just the buildings: There’s mothers and fathers and uncles and aunts and brothers and sisters working there. And we have people who we care about, people who are from all walks of life. And we are doing it for them as well.”
We recently co-hosted a webinar on Disability and Inclusion Strategies During COVID-19 with Magical Bridge foundation, to address some of the issues disabled and autistic people and their families are struggling with right now. Jill Asher from Magical Bridge moderated, TPGA’s senior editor Shanon Rosa ran the questions, and our panelists were three disabled parents of chidren with disabilities: Our own editor Carol Greenburg, and disability consultants Anne Cohen and Deborah Vick. We hope this is the first of many useful sessions! Video and full transcript below. Jill Asher: Hi everyone. Good morning, or good afternoon wherever you are. My name is Jill Asher. I’m the executive director and co-founder of Magical Bridge. We are so incredibly grateful to have you join us today as we discuss disability and inclusive strategies during COVID-19. We hope everyone is safe and health and sheltering in place right now, wherever you are. A…